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  1. Article

    Parental Preferences for Primary and Specialty Care Collaboration in the Management of Teens with Congenital Heart Disease

    Marlene R Miller, Jean S Kan, Christopher B Forrest in Pediatric Research (1999)

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  2. Article

    A Severity of Illness Index and Health-Related Quality of Life for Teens with Congenital Heart Disease

    Marlene R Miller, Jean S Kan, Christopher B Forrest in Pediatric Research (1999)

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    Article

    Factors Promoting or Potentially Impeding School Success: Disparities and State Variations for Children with Special Health Care Needs

    School success predicts many pathways for health and well-being across the life span. Factors promoting or potentially impeding school success are critical to understand for all children and for children with ...

    Christina Bethell, Christopher B. Forrest… in Maternal and Child Health Journal (2012)

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    Article

    A Family Psychosocial Risk Questionnaire for Use in Pediatric Practice

    The objective of this study is to develop new methods to better identify psychosocial risk such that children with the greatest risk of poor future outcomes receive more intensive preventive health services. B...

    Susmita Pati, James Guevara, Guangxiang Zhang… in Maternal and Child Health Journal (2013)

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    Article

    Privacy-protecting multivariable-adjusted distributed regression analysis for multi-center pediatric study

    Privacy-protecting analytic approaches without centralized pooling of individual-level data, such as distributed regression, are particularly important for vulnerable populations, such as children, but these m...

    Sengwee Toh, Sheryl L. Rifas-Shiman, Pi-I D. Lin, L. Charles Bailey… in Pediatric Research (2020)

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    Article

    The real world experience of pediatric primary hyperoxaluria patients in the PEDSnet clinical research network

    The rarity of primary hyperoxaluria (PH) challenges our understanding of the disease. The purpose of our study was to describe the course of clinical care in a United States cohort of PH pediatric patients, hi...

    Christina B. Ching, Kimberley Dickinson, John Karafilidis… in European Journal of Pediatrics (2023)

  7. Article

    Open Access

    Electronic health records identify timely trends in childhood mental health conditions

    Electronic health records (EHRs) data provide an opportunity to collect patient information rapidly, efficiently and at scale. National collaborative research networks, such as PEDSnet, aggregate EHRs data acr...

    Josephine Elia, Kathleen Pajer… in Child and Adolescent Psychiatry and Mental… (2023)

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  8. Article

    Open Access

    Clinical course and management of children with IgA vasculitis with nephritis

    IgA vasculitis is the most common vasculitis in children and is often complicated by acute nephritis (IgAVN). Risk of chronic kidney disease (CKD) among children with IgAVN remains unknown. This study aimed to...

    Hillarey K. Stone, Mark Mitsnefes, Kimberley Dickinson… in Pediatric Nephrology (2023)

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    Article

    Clinical characteristics and favorable treatment responses of recurrent focal segmental glomerulosclerosis or steroid-resistant nephrotic syndrome in children after kidney transplantation

    Recurrence of focal segmental glomerulosclerosis (FSGS) or steroid-resistant nephrotic syndrome (SRNS) after kidney transplant leads to significant morbidity and potentially earlier allograft loss. To date how...

    Vikas R. Dharnidharka, Rebecca R. Scobell, Mahmoud Kallash… in Pediatric Nephrology (2024)