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Article
The real world experience of pediatric primary hyperoxaluria patients in the PEDSnet clinical research network
The rarity of primary hyperoxaluria (PH) challenges our understanding of the disease. The purpose of our study was to describe the course of clinical care in a United States cohort of PH pediatric patients, hi...
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Article
Open AccessHealthcare utilization, quality of life, and work productivity associated with primary hyperoxaluria: a cross-sectional web-based US survey
Primary hyperoxaluria (PH) is a family of ultra-rare, autosomal recessive, metabolic disorders associated with frequent kidney stones, chronic kidney disease and kidney failure, and serious complications due t...
