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Article
Extracting big data from the internet to support the development of a new patient-reported outcome measure for breast implant illness: a proof of concept study
Individuals with health conditions often use online patient forums to share their experiences. These patient data are freely available and have rarely been used in patient-reported outcomes (PRO) research. Web...
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Article
Open AccessIterative qualitative approach to establishing content validation of a patient-reported outcome measure for arm lymphedema: the LYMPH-Q Upper Extremity Module
Breast cancer-related lymphedema (BRCL) is one of the most common causes of upper extremity (UE) lymphedema in developed nations and substantially impacts health-related quality of life. To advance our underst...
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Article
Open AccessDutch translation and cultural adaptation of new LYMPH-Q- scales measuring impact on work and lymphedema worry
Breast cancer-related lymphedema (BCRL) is a significant complication of breast cancer treatment that can impact patients’ quality of life. This study focuses on the translation and cultural adaptation of two ...
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Article
Open AccessPatient-reported outcome measures for primary hyperparathyroidism: a systematic review of measurement properties
The quality of patient-reported outcome measures (PROMs) used to assess the outcomes of primary hyperparathyroidism (PHPT), a common endocrine disorder that can negatively affect patients’ health-related quali...
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Article
Open AccessUse of patient-reported outcome measures after breast reconstruction in low- and middle-income countries: a sco** review
Patient-reported outcome measures (PROMs) are increasingly administered in high-income countries to monitor health-related quality of life of breast cancer patients undergoing breast reconstruction. Although l...
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Article
Open AccessCan we do better at measuring patient-reported outcomes after cranioplasty? A systematic review
Measuring quality of life (QOL) after cranioplasty is increasingly evident as a necessary component of patient-centered care. For data to be useful in clinical decision-making and approval of new therapies, st...
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Article
Open AccessRe-examining content validity of the BREAST-Q more than a decade later to determine relevance and comprehensiveness
The BREAST-Q is the most used patient-reported outcome measure (PROM) in breast cancer surgery. The purposes of this study were to re-examine the content validity of BREAST-Q cancer modules (mastectomy, lumpec...
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Article
Open AccessUsing patient-reported outcome measures to assess psychological well-being in a non-representative US general population during the COVID-19 pandemic
The impact of the COVID-19 pandemic on psychological well-being will likely be long-lasting. Efforts directed towards monitoring the onset and progression of distress and mental health disorders are needed to ...
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Article
Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond
The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic’s impact on the health and health preferences of patien...
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Article
Open AccessImplementing patient-reported outcomes in routine clinical care for diverse and underrepresented patients in the United States
Patient-reported outcomes (PROs) are used increasingly in routine clinical care and inform policies, reimbursements, and quality improvement. Less is known regarding PRO implementation in routine clinical care...
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Article
Open AccessAn international mixed methods study to develop a new preference-based measure for women with breast cancer: the BREAST-Q Utility module
Generic preference-based measures (PBM), though commonly used, may not be optimal for use in economic evaluations of breast cancer interventions. No breast cancer-specific PBM currently exists, and the generic...
