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Article
Open AccessConversation for change: engaging older adults as partners in research on gerotechnology
There is increasing research and public policy investment in the development of technologies to support healthy aging and age-friendly services in Canada. Yet adoption and use of technologies by older adults i...
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Article
Open AccessDevelo** Psychologically Compelling Understanding of the Involvement of Humans in Research
Research conducted on humans has a long history of ethical protections, with the Nuremberg trials in 1945 and 1946 triggering stronger protection across most jurisdictions. While there have been many reorienta...
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Chapter
Assessing Deliberative Design of Public Input on British Columbia Biobanks
This chapter critically assesses the public deliberative methodologies used in British Columbia, which involved deliberative events spanning two weekends with 20–25 citizen-deliberators. The development of pub...
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Article
Cohorts and consortia conference: a summary report (Banff, Canada, June 17–19, 2009)
Epidemiologic studies have adapted to the genomics era by forming large international consortia to overcome issues of large data volume and small sample size. Whereas both cohort and well-conducted case–contro...
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Article
Open AccessSequencing the salmon genome: A deliberative public engagement
Salmon genomics is an emerging field that represents a convergence between socially important scientific innovation and a politically volatile topic of significant interest to the public. These factors provide...
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Article
Agency and Choice in Genetic Counseling: Acknowledging Patients’ Concerns
This paper investigates to what degree patients can be said to effectively manifest agency during the process of genetic counseling for cancer risk. Rather than talk about agency on an abstract level, the discuss...
