-
Article
Open AccessIntegrating accompanying patients into clinical oncology teams: limiting and facilitating factors
Since 2018, four establishments in Quebec have been instrumental in implementing the PAROLE-Onco program, which introduced accompanying patients (APs) into healthcare teams to improve cancer patients’ experien...
-
Article
Open AccessModeling early germline immunization after horizontal transfer of transposable elements reveals internal piRNA cluster heterogeneity
A fraction of all genomes is composed of transposable elements (TEs) whose mobility needs to be carefully controlled. In gonads, TE activity is repressed by PIWI-interacting RNAs (piRNAs), a class of small RNA...
-
Article
Open AccessAn exploratory cross-sectional study of the effects of ongoing relationships with accompanying patients on cancer care experience, self-efficacy, and psychological distress
Centre hospitalier de l’Université de Montréal in Canada introduced accompanying patients (APs) into the breast cancer care trajectory. APs are patients who have been treated for breast cancer and have been in...
-
Article
Open AccessHow compassionate communities are implemented and evaluated in practice: a sco** review
Compassionate communities are rooted in a health promotion approach to palliative care, aiming to support solidarity among community members at the end of life. Hundreds of compassionate communities have been ...
-
Article
Open AccessDevelo** a Canadian evaluation framework for patient and public engagement in research: study protocol
Patient and public engagement (PPE) in research is growing internationally, and with it, the interest for its evaluation. In Canada, the Strategy for Patient-Oriented Research has generated national momentum a...
-
Article
Open AccessPartnering with patients in healthcare research: a sco** review of ethical issues, challenges, and recommendations for practice
Partnering with patients in healthcare research now benefits from a strong rationale and is encouraged by funding agencies and research institutions. However, this new approach raises ethical issues for patien...
-
Chapter
The Participation of Patients and Relatives in Quebec’s Health System: The Montréal Model
This chapter presents the way in which citizen and patient participation in Quebec’s health and social services system came about, particularly though the presentation of what is now recognized as the “Montréa...
-
Article
Open AccessArea deprivation and attachment to a general practitioner through centralized waiting lists: a cross-sectional study in Quebec, Canada
Access to primary healthcare is an important social determinant of health and having a regular general practitioner (GP) has been shown to improve access. In Canada, socio-economically disadvantaged patients a...
-
Article
Open AccessPrimary health care organizational characteristics associated with better accessibility: data from the QUALICO-PC survey in Quebec
First-contact accessibility remains an important problem in Canada, with this indicator staying the worst of all Organization for Economic Co-operation and Development countries. In the province of Quebec, a n...
-
Article
Open AccessWhat do we know about the needs and challenges of health systems? A sco** review of the international literature
While there is an extensive literature on Health System (HS) strengthening and on the performance of specific HSs, there are few exhaustive syntheses of the challenges HSs are facing worldwide. This paper repo...
-
Article
Open AccessA network perspective on patient experiences and health status: the Medical Expenditure Panel Survey 2004 to 2011
There is a growing emphasis on the need to engage patients in order to improve the quality of health care and improve health outcomes. However, we are still lacking a comprehensive understanding on how differe...
-
Article
Open AccessAssessing the performance of centralized waiting lists for patients without a regular family physician using clinical-administrative data
With 4.6 million patients who do not have a regular family physician, Canada performs poorly compared to other OECD countries in terms of attachment to a family physician. To address this issue, several provin...
-
Article
Open AccessInternational changes in end-of-life practices over time: a systematic review
End-of-life policies are hotly debated in many countries, with international evidence frequently used to support or oppose legal reforms. Existing reviews are limited by their focus on specific practices or se...
-
Article
Open AccessAn international cross-sectional survey on the Quality and Costs of Primary Care (QUALICO-PC): recruitment and data collection of places delivering primary care across Canada
Performance reporting in primary health care in Canada is challenging because of the dearth of concise and synthesized information. The paucity of information occurs, in part, because the majority of primary h...
-
Article
Open AccessWho gets a family physician through centralized waiting lists?
North American patients are experiencing difficulties in securing affiliations with family physicians. Centralized waiting lists are increasingly being used in Organisation for Economic Co-operation and Develo...
-
Article
Open AccessEvaluation of the implementation of centralized waiting lists for patients without a family physician and their effects across the province of Quebec
Most national and provincial commissions on healthcare services in Canada over the past decade have recommended that primary care services be strengthened in order to guarantee each citizen access to a family ...
-
Article
Open AccessInvolving patients in setting priorities for healthcare improvement: a cluster randomized trial
Patients are increasingly seen as active partners in healthcare. While patient involvement in individual clinical decisions has been extensively studied, no trial has assessed how patients can effectively be i...
-
Article
Paramutation in Drosophila linked to emergence of a piRNA-producing locus
A paramutation occurs between two alleles in the same locus, when one allele induces a heritable mutation in another allele without modifying the DNA sequence; now, in Drosophila, a paramutation is shown to be tr...
-
Article
Open AccessTarget for improvement: a cluster randomised trial of public involvement in quality-indicator prioritisation (intervention development and study protocol)
Public priorities for improvement often differ from those of clinicians and managers. Public involvement has been proposed as a way to bridge the gap between professional and public clinical care priorities bu...
-
Article
Open AccessHow to integrate individual patient values and preferences in clinical practice guidelines? A research protocol
Clinical practice guidelines are largely conceived as tools that will inform health professionals' decisions rather than foster patient involvement in decision making. The time now seems right to adapt clinica...
