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Article
Concurrent validity of the PROMIS® pediatric global health measure
To evaluate the concurrent validity of the PROMIS Pediatric Global Health measure (PGH-7), child-report and parent-proxy versions.
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Article
Children’s family experiences: development of the PROMIS® pediatric family relationships measures
To describe the development of pediatric family relationships measures, with versions for child self-report (8–17 years) and parent-report for children 5–17 years old. Measures were created for integration int...
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Book
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Chapter
Erratum to: Handbook of Life Course Health Development
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Article
Development and psychometric evaluation of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions
To describe the psychometric evaluation and item response theory calibration of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions.
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Chapter
Life Course Research Agenda (LCRA), Version 1.0
Life course health science research is “connecting the dots” between child health development, adult patterns of premature morbidity and mortality, and more integrated notions of healthy aging. However, there ...
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Chapter
A Life Course Health Development Perspective on Oral Health
This chapter outlines major concepts and principles embodied in the Life Course Health Development framework, examines evidence relating various aspects of major oral health-related conditions to this framewor...
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Article
Development and Evaluation of the PROMIS® Pediatric Positive Affect Item Bank, Child-Report and Parent-Proxy Editions
The purpose of this study is to describe the psychometric evaluation and item response theory (IRT) calibration of the PROMIS Pediatric Positive Affect item bank, child-report and parent-proxy editions. The in...
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Article
Importance ratings on patient-reported outcome items for survivorship care: comparison between pediatric cancer survivors, parents, and clinicians
To compare importance ratings of patient-reported outcomes (PROs) items from the viewpoints of childhood cancer survivors, parents, and clinicians for further develo** short-forms to use in survivorship care.
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Article
Open AccessDevelo** a framework for the ethical design and conduct of pragmatic trials in healthcare: a mixed methods research protocol
There is a widely recognized need for more pragmatic trials that evaluate interventions in real-world settings to inform decision-making by patients, providers, and health system leaders. Increasing availabili...
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Article
Open AccessSpatial accessibility to pediatric primary care in Philadelphia: an area-level cross sectional analysis
Pediatric primary care visits are a foundational element in the health maintenance of children. Differential access may be a driver of racial inequities in health. We hypothesized that pediatric primary care a...
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Article
Maternal antibiotic use during pregnancy and childhood obesity at age 5 years
The benefits of antibiotic treatment during pregnancy are immediate, but there may be long-term risks to the develo** child. Prior studies show an association between early life antibiotics and obesity, but ...
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Article
Open AccessEstablishing the content validity of PROMIS Pediatric pain interference, fatigue, sleep disturbance, and sleep-related impairment measures in children with chronic kidney disease and Crohn’s disease
PROMIS Pediatric patient-reported outcome measures were developed with children from the general population, and their content validity has not been established in children with chronic disease. This study was...
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Article
Investigating child self-report capacity: a systematic review and utility analysis
To identify and evaluate methods for assessing pediatric patient-reported outcome (PRO) data quality at the individual level.
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Article
Privacy-protecting multivariable-adjusted distributed regression analysis for multi-center pediatric study
Privacy-protecting analytic approaches without centralized pooling of individual-level data, such as distributed regression, are particularly important for vulnerable populations, such as children, but these m...
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Article
Better sleep, better life? How sleep quality influences children’s life satisfaction
To assess the association between children’s sleep quality and life satisfaction; and to evaluate the underlying mechanisms of this relationship.
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Article
Are there birth cohort effects in disparities in child obesity by maternal education?
Children belonging to the same birth cohort (i.e., born in the same year) experience shared exposure to a common obesity-related milieu during the critical early years of development—e.g., secular beliefs and ...
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Article
Using nationally representative percentiles to interpret PROMIS pediatric measures
This study’s aim was to use a representative sample of the US pediatric population to estimate percentiles for several PROMIS pediatric measures: Anger, Anxiety, Depressive Symptoms, Family Relationships, Fati...
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Article
Open AccessClinical data for paediatric research: the Swiss approach
Continuous improvement of health and healthcare system is hampered by inefficient processes of generating new evidence, particularly in the case of rare diseases and paediatrics. Currently, most evidence is ge...
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Article
Open AccessAn efficient and accurate distributed learning algorithm for modeling multi-site zero-inflated count outcomes
Clinical research networks (CRNs), made up of multiple healthcare systems each with patient data from several care sites, are beneficial for studying rare outcomes and increasing generalizability of results. W...