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Article
Open AccessGetting your DUCs in a row - standardising the representation of Digital Use Conditions
Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical resources that must also respect applicable use condition...
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Article
Open AccessCommon conditions of use elements. Atomic concepts for consistent and effective information governance
Myriad policy, ethical and legal considerations underpin the sharing of biological resources, implying the need for standardised and yet flexible ways to digitally represent diverse ‘use conditions’. We report...
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Article
Open AccessResponsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M)
Given the data-rich nature of modern biomedical research, there is a pressing need for a systematic, structured, computer-readable way to capture, communicate, and manage sharing rules that apply to biomedical...
