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Article
Open AccessGetting your DUCs in a row - standardising the representation of Digital Use Conditions
Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical resources that must also respect applicable use condition...
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Article
Open AccessCommon conditions of use elements. Atomic concepts for consistent and effective information governance
Myriad policy, ethical and legal considerations underpin the sharing of biological resources, implying the need for standardised and yet flexible ways to digitally represent diverse ‘use conditions’. We report...
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Article
Open AccessPublic Biological Databases and the Sui Generis Database Right
The sui generis database right is an intellectual property right created in the European Union to stimulate investment in the curation of databases. Since its inception, communities engaged in research and develo...
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Article
Open AccessAuthor Correction: Computational tools for genomic data de-identification: facilitating data protection law compliance
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Open AccessComputational tools for genomic data de-identification: facilitating data protection law compliance
In this opinion piece, we discuss why computational tools to limit the identifiability of genomic data are a promising avenue for privacy-preservation and legal compliance. Even where these technologies do not...
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Article
Correction to: Pandemics, privacy, and public health research
In the section entitled "Responsive and responsible data sharing,"
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Open AccessPandemics, privacy, and public health research
Sharing data expediently for pandemic response purposes exposes healthcare providers in Canada to significant regulatory uncertainty. Duplicative and contradictory ethical and legal duties flowing from overlap...
