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  1. Article

    Open Access

    Mental health impact on healthcare workers due to the COVID-19 pandemic: a U.S. cross-sectional survey study

    The COVID-19 pandemic has impacted the mental health and well-being of health care workers (HCWs). This study examined mental health outcomes and COVID-related stress impacts among a diverse sample of ambulato...

    Joshua Biber, Bethany Ranes, Shanieek Lawrence in Journal of Patient-Reported Outcomes (2022)

  2. Article

    Open Access

    The relationship between frequency and severity of vaso-occlusive crises and health-related quality of life and work productivity in adults with sickle cell disease

    Patients with sickle cell disease (SCD) may experience sickle cell-related pain crises, also referred to as vaso-occlusive crises (VOCs), which are a substantial cause of morbidity and mortality. The study exp...

    Avery A. Rizio, Menaka Bhor, **aochen Lin in Quality of Life Research (2020)

  3. Article

    Open Access

    Associations between Health-Related Quality of Life and Self-Reported Emergency Room Department Visits and Inpatient Hospitalizations: Insights from a Secondary Data Analysis of Patients with Light-Chain (AL) Amyloidosis

    Light-chain (AL) amyloidosis is a rare, progressive, and typically fatal disease. Health-related quality of life (HRQoL) has been shown to be a significant prognostic factor associated with clinical outcomes s...

    Kristen L. McCausland, Avery A. Rizio, Michelle K. White in PharmacoEconomics - Open (2019)

  4. Article

    Open Access

    Light Chain (AL) Amyloidosis: The Journey to Diagnosis

    Light chain (AL) amyloidosis is a rare, complex disease associated with significant morbidity and mortality. Delays in diagnosis are common and may have detrimental consequences on patients’ prognosis. Too lit...

    Kristen L. McCausland, Michelle K. White in The Patient - Patient-Centered Outcomes Re… (2018)

  5. Article

    Open Access

    Content validation of the SF-36v2® health survey with AL amyloidosis patients

    This study examined the content validity of the SF-36v2® Health Survey (SF-36v2) in patients with AL amyloidosis using qualitative interviews with physicians and patients. The study included three distinct pha...

    Michelle K. White, Martha S. Bayliss in Journal of Patient-Reported Outcomes (2017)

  6. Article

    Open Access

    The burden of amyloid light chain amyloidosis on health-related quality of life

    Light chain (AL) amyloidosis is a rare disease characterized by misfolded amyloid protein deposits in tissues and vital organs, and little is known about the burden of AL amyloidosis on health-related quality ...

    Martha Bayliss, Kristen L. McCausland in Orphanet Journal of Rare Diseases (2017)