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Open AccessBehavioural and psychological patterns of patients with idiopathic pulmonary fibrosis: a prospective study
Idiopathic pulmonary fibrosis (IPF) is a chronic and progressive lung condition. Currently, care models predominantly focus on acute medical and pharmacological needs. As a step towards holistic care, the aim ...
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Psychology of Living Kidney Donation
Having your kidney removed in order to save the life of someone with kidney failure is more than just a physical experience but is also a psychological one. Psychological issues include donor motivation and un...
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Open AccessDevelopment of an integrated model of care for allogeneic stem cell transplantation facilitated by eHealth—the SMILe study
Allogeneic stem cell transplantation would benefit from re-engineering care towards an integrated eHealth-facilitated care model. With this paper we aim to: (1) describe the development of an integrated care mode...
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Open AccessCare programs and their components for patients with idiopathic pulmonary fibrosis: a systematic review
The multidimensional and complex care needs of patients with idiopathic pulmonary fibrosis (IPF) call for appropriate care models. This systematic review aimed to identify care models or components thereof tha...
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Open AccessPatients’ and healthcare professionals’ perspectives on the idiopathic pulmonary fibrosis care journey: a qualitative study
Idiopathic pulmonary fibrosis (IPF) highly impacts patients on several life dimensions and challenges healthcare practices in providing high-quality care. Consequently, it is crucial to establish integrated ca...
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Open AccessTheory-driven development of a medication adherence intervention delivered by eHealth and transplant team in allogeneic stem cell transplantation: the SMILe implementation science project
Medication adherence to immunosuppressants in allogeneic stem cell transplantation (alloSCT) is essential to achieve favorable clinical outcomes (e.g. control of Graft-versus-Host Disease). Over 600 apps suppo...
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Open AccessValidation of the patient assessment of chronic illness care (PACIC) short form scale in heart transplant recipients: the international cross-sectional bright study
Transplant recipients are chronically ill patients, who require lifelong follow-up to manage co-morbidities and prevent graft loss. This necessitates a system of care that is congruent with the Chronic Care Mo...
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The Approach to the Psychosocial Evaluation of Cardiac Transplant and Mechanical Circulatory Support Candidates
We update evidence underlying the recommendations of a 2018 multi-society consensus report regarding the psychosocial evaluation of individuals for cardiothoracic transplantation and mechanical circulatory sup...
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Renal Replacement Therapy in children with severe developmental disability: guiding questions for decision-making
Whether to initiate or to withhold Renal Replacement Therapy (RRT) in children with severe developmental disability (DD) remains a topic of intense debate. The present study investigated the opinion of profess...
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Accuracy and usability of the eGVHD app in assessing the severity of graft-versus-host disease at the 2017 EBMT annual congress
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Open AccessEffect of an interactive E-learning tool for delirium on patient and nursing outcomes in a geriatric hospital setting: findings of a before-after study
Education of healthcare workers is a core element of multicomponent delirium strategies to improve delirium care and, consequently, patient outcomes. However, traditional educational strategies are notoriously...
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Open AccessThe effect of an interactive delirium e-learning tool on healthcare workers’ delirium recognition, knowledge and strain in caring for delirious patients: a pilot pre-test/post-test study
Studies investigating the effectiveness of delirium e-learning tools in clinical practice are scarce. The aim of this study is to determine the effect of a delirium e-learning tool on healthcare workers’ delir...
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Is an Absolute Prohibition of Living Kidney Donation by Minors Appropriate? A Discussion of the Arguments in Favor and Against
Kidney transplantation is the treatment of choice for many patients suffering from end-stage renal disease and is associated with a lower incidence of morbidity,a higher quality of life and favorable cost effe...
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Systematic Review of Clinical Practice Guidelines for the Improvement of Medication Adherence
Poor adherence to medications is a significant problem that leads to increased morbidity, mortality, and health care costs. Recommended approaches to address medication adherence vary, and existing practice gu...
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Adherence of patients to long-term medication: a cross-sectional study of antihypertensive regimens in Austria
The objective of this study was to evaluate adherence and causes for non-adherence to antihypertensive therapy in Austrian patients. A special focus was placed on social parameters and behavioural theories.
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Open AccessIdentification and Assessment of Adherence-Enhancing Interventions in Studies Assessing Medication Adherence Through Electronically Compiled Drug Dosing Histories: A Systematic Literature Review and Meta-Analysis
Non-adherence to medications is prevalent across all medical conditions that include ambulatory pharmacotherapy and is thus a major barrier to achieving the benefits of otherwise effective medicines.
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Open AccessExplorative study on patient’s perceived knowledge level, expectations, preferences and fear of side effects for treatment for allergic rhinitis
In spite of the high prevalence of allergic rhinitis (AR) and the evidence-based guidelines for treatment, little is known about the patients’ perceived knowledge level, expectations, preferences for treatment...
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Open AccessPatient-reported physical activity questionnaires: A systematic review of content and format
Many patients with chronic illness are limited in their physical activities. This systematic review evaluates the content and format of patient-reported outcome (PRO) questionnaires that measure physical activ...
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Open AccessA comprehensive systematic review of the development process of 104 patient-reported outcomes (PROs) for physical activity in chronically ill and elderly people
Capturing dimensions of physical activity relevant to patients may provide a unique perspective for clinical studies of chronically ill patients. However, the quality of the development of existing instruments...
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Open AccessValidity of instruments to measure physical activity may be questionable due to a lack of conceptual frameworks: a systematic review
Guidance documents for the development and validation of patient-reported outcomes (PROs) advise the use of conceptual frameworks, which outline the structure of the concept that a PRO aims to measure. It is u...
