Psychology of Living Kidney Donation

  • Chapter
  • First Online:
Living Kidney Donation

Abstract

Having your kidney removed in order to save the life of someone with kidney failure is more than just a physical experience but is also a psychological one. Psychological issues include donor motivation and understanding of the procedure, potential imbalances in the donor-recipient relationship and expectations of one another, the potential for pressure from or conflict with the social network due to donation, concerns or ambivalence about donation, donor resilience and psychological stability, ability to deal with setbacks, and availability of instrumental and emotional support during the process. Consequently, psychosocial evaluation of potential living kidney donors is an important step in the process. In this chapter we discuss the psychological screening of living donors as well as the topics that are typically incorporated into this evaluation including motivation, decision-making, the donor-recipient relationship, mental health, co** and social support. In addition, we discuss how donors experience the donation process and the current state of the art regarding long term psychosocial outcomes among living donors.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Subscribe and save

Springer+ Basic
EUR 32.99 /Month
  • Get 10 units per month
  • Download Article/Chapter or Ebook
  • 1 Unit = 1 Article or 1 Chapter
  • Cancel anytime
Subscribe now

Buy Now

Chapter
EUR 29.95
Price includes VAT (Germany)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
EUR 93.08
Price includes VAT (Germany)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
EUR 117.69
Price includes VAT (Germany)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free ship** worldwide - see info
Hardcover Book
EUR 160.49
Price includes VAT (Germany)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free ship** worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Similar content being viewed by others

References

  1. Dor FJMF, Massey EK, Frunza M, Johnson R, Lennerling A, Loven C, et al. New classification of ELPAT for living organ donation. Transplantation. 2011;91(9):935–8.

    Article  PubMed  Google Scholar 

  2. Lennerling A, Lovén C, Dor FJMF, Ambagtsheer F, Duerinckx N, Frunza M, et al. Living organ donation practices in Europe—results from an online survey. Transpl Int. 2013;26(2):145–53.

    Article  PubMed  Google Scholar 

  3. Duerinckx N, Timmerman L, Van Gogh J, van Busschbach J, Ismail SY, Massey EK, et al. Predonation psychosocial evaluation of living kidney and liver donor candidates: a systematic literature review. Transpl Int. 2014;27(1):2–18.

    Article  PubMed  Google Scholar 

  4. Tong A, Chapman JR, Wong G, de Bruijn J, Craig JC. Screening and follow-up of living kidney donors: a systematic review of clinical practice guidelines. Transplantation. 2011;92(9):962–72.

    Article  PubMed  Google Scholar 

  5. Iacoviello BM, Shenoy A, Braoude J, Jennings T, Vaidya S, Brouwer J, et al. The live donor assessment tool: a psychosocial assessment tool for live organ donors. Psychosomatics. 2015;56(3):254–61.

    Article  PubMed  Google Scholar 

  6. Ismail SY, Duerinckx N, van der Knoop MM, Timmerman L, Weimar W, Dobbels F, et al. Toward a conceptualization of the content of psychosocial screening in living organ donors: an ethical legal psychological aspects of transplantation consensus. Transplantation. 2015;99:2413–21.

    Article  PubMed  Google Scholar 

  7. Massey EK, Timmerman L, Ismail SY, Duerinckx N, Lopes A, Maple H, et al. The ELPAT living organ donor psychosocial assessment tool (EPAT): from ‘what’ to ‘how’ of psychosocial screening—a pilot study. Transpl Int. 2018;31(1):56–70.

    Article  PubMed  Google Scholar 

  8. Jacobs C, Berglund DM, Wiseman JF, Garvey C, Larson DB, Voges M, et al. Long-term psychosocial outcomes after nondirected donation: a single-center experience. Am J Transplant. 2019;19(5):1498–506.

    Article  PubMed  Google Scholar 

  9. Massey EK, Kranenburg LW, Zuidema WC, Hak G, Erdman RAM, Hilhorst M, et al. Encouraging psychological outcomes after altruistic donation to a stranger. Am J Transplant. 2010;10:1445–52.

    Article  CAS  PubMed  Google Scholar 

  10. Balliet W, Kazley AS, Johnson E, Holland-Carter L, Maurer S, Correll J, et al. The non-directed living kidney donor: why donate to strangers? J Ren Care. 2019;45(2):102–10.

    Article  PubMed  Google Scholar 

  11. Tong A, Chapman JR, Wong G, Kanellis J, McCarthy G, Craig JC. The motivations and experiences of living kidney donors: a thematic synthesis. Am J Kidney Dis. 2012;60(1):15–26.

    Article  PubMed  Google Scholar 

  12. Jacobs CL, Gross CR, Messersmith EE, Hong BA, Gillespie BW, Hill-Callahan P, et al. Emotional and financial experiences of kidney donors over the past 50 years: the RELIVE study. Clin J Am Soc Nephrol. 2015;10(12):2221–31.

    Article  PubMed  PubMed Central  Google Scholar 

  13. de Groot IBSK, van Dijk S, van der Boog PJ, Stiggelbout AM, Baranski AG. Marang-van de Mheen PJ; PARTNER-study group. Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changes. BMC Nephrol. 2012;13:103.

    Article  PubMed  PubMed Central  Google Scholar 

  14. Maghen A, Vargas GB, Connor SE, Nassiri S, Hicks EM, Kwan L, et al. Spirituality and religiosity of non-directed (altruistic) living kidney donors. J Clin Nurs. 2018;27(7–8):1662–72.

    Article  PubMed  PubMed Central  Google Scholar 

  15. Lennerling A, Forsberg A, Meyer K, Nyberg G. Motives for becoming a living kidney donor. Nephrol Dial Transplant. 2004;19(6):1600–5.

    Article  PubMed  Google Scholar 

  16. Biller-Andorno N. Voluntariness in living-related organ donation. Transplantation. 2011;92(6):617–9.

    Article  PubMed  Google Scholar 

  17. Nöhre M, Pollmann I, Mikuteit M, Weissenborn K, Gueler F, de Zwaan M. Partnership satisfaction in living kidney donors. Front Psych. 2018;9:353.

    Article  Google Scholar 

  18. Clemens KK, Thiessen-Philbrook H, Parikh CR, Yang RC, Karley ML, Boudville N, et al. Psychosocial health of living kidney donors: a systematic review. Am J Transplant. 2006;6(12):2965–77.

    Article  CAS  PubMed  Google Scholar 

  19. Slaats D, Lennerling A, Pronk MC, van der Pant KAMI, Dooper IM, Wierdsma JM, et al. Donor and recipient perspectives on anonymity in living kidney donation: a multi-center survey study. Am J Kidney Dis. 2018;71:52–64.

    Article  PubMed  Google Scholar 

  20. Pronk MC, Slaats D, van der Pant KAMI, Vervelde J, Dooper IM, Dor FJMF, et al. Toward a conditional approach to anonymity? An explorative multicenter longitudinal study among anonymous living kidney donors and recipients. Transpl Int. 2017;30(12):1243–52.

    Article  PubMed  Google Scholar 

  21. Timmerman L, Timman R, Laging M, Zuidema WC, Beck DK, Ijzermans JNM, et al. Predicting mental health after living kidney donation: the importance of psychological factors. Br J Health Psychol. 2016;21(3):533–54.

    Article  PubMed  Google Scholar 

  22. Frech A, Natale G, Hayes D Jr, Tumin D. Marital status and return to work after living kidney donation. Prog Transplant. 2018;28(3):226–30.

    Article  PubMed  Google Scholar 

  23. Menjivar A, Torres X, Paredes D, Avinyo N, Peri JM, De Sousa-Amorim E, et al. Assessment of donor satisfaction as an essential part of living donor kidney transplantation: an eleven-year retrospective study. Transpl Int. 2018;31(12):1332–44.

    Article  PubMed  Google Scholar 

  24. Jacobs CL, Roman D, Garvey C, Kahn J, Matas AJ. Twenty-two nondirected kidney donors: an update on a single Center's experience. Am J Transplant. 2004;4(7):1110–6.

    Article  PubMed  Google Scholar 

  25. Maple H, Chilcot J, Weinman J, Mamode N. Psychosocial wellbeing after living kidney donation—a longitudinal, prospective study. Transpl Int. 2017;30:987–1001.

    Article  PubMed  Google Scholar 

  26. Fournier C, Pallet N, Cherqaoui Z, Pucheu S, Kreis H, Méjean A, et al. Very long-term follow-up of living kidney donors. Transpl Int. 2012;25(4):385–90.

    Article  CAS  PubMed  Google Scholar 

  27. Holscher CM, Leanza J, Thomas AG, Waldram MM, Haugen CE, Jackson KR, et al. Anxiety, depression, and regret of donation in living kidney donors. BMC Nephrol. 2018;19(1):218.

    Article  PubMed  PubMed Central  Google Scholar 

  28. Johnson EM, Anderson JK, Jacobs C, Suh G, Humar A, Suhr BD, et al. Long-term follow-up of living kidney donors: quality of life after donation. Transplantation. 1999;67(5):717–21.

    Article  CAS  PubMed  Google Scholar 

  29. Kobayashi S, Akaho R, Omoto K, Shirakawa H, Shimizu T, Ishida H, et al. Post-donation satisfaction in kidney transplantation: a survey of living donors in Japan. BMC Health Serv Res. 2019;19(1):755.

    Article  PubMed  PubMed Central  Google Scholar 

  30. Schover LR, Streem SB, Boparai N, Duriak K, Novick AC. The psychosocial impact of donating a kidney: long-term Followup from a urology based Center. J Urol. 1997;157(5):1596–601.

    Article  CAS  PubMed  Google Scholar 

  31. Wirken L, van Middendorp H, Hooghof CW, Rovers MM, Hoitsma AJ, Hilbrands LB, et al. The course and predictors of health-related quality of life in living kidney donors: a systematic review and meta-analysis. Am J Transplant. 2015;15:3041–54.

    Article  CAS  PubMed  Google Scholar 

  32. Timmerman L, Laging M, Westerhof GJ, Timman R, Zuidema WC, Beck DK, et al. Mental health among living kidney donors: a prospective comparison with matched controls from the general population. Am J Transplant. 2015;15(2):508–17.

    Article  CAS  PubMed  Google Scholar 

  33. Gross CR, Messersmith EE, Hong BA, Jowsey SG, Jacobs C, Gillespie BW, et al. Health-related quality of life in kidney donors from the last five decades: results from the RELIVE study. Am J Transplant. 2013;13(11):2924–34.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  34. Frade IC, Fonseca I, Dias L, Henriques AC, Martins LS, Santos J, et al. Impact assessment in living kidney donation: psychosocial aspects in the donor. Transplant Proc. 2008;40(3):677–81.

    Article  CAS  PubMed  Google Scholar 

  35. Timmerman L, Laging M, Timman R, Zuidema WC, Beck DK, Ijzermans JNM, et al. The impact of the donors' and recipients' medical complications on living kidney donors' mental health. Transpl Int. 2016;29(5):589–602.

    Article  PubMed  Google Scholar 

  36. Rodrigue JR, Fleishman A, Schold JD, Morrissey P, Whiting J, Vella J, et al. Patterns and predictors of fatigue following living donor nephrectomy: findings from the KDOC study. Am J Transplant. 2020;20(1):181–9.

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Emma K. Massey .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2022 Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Massey, E.K., Dobbels, F., Mega, I., Papachristou, C. (2022). Psychology of Living Kidney Donation. In: Sharif, A., Lipkin, G. (eds) Living Kidney Donation. Springer, Cham. https://doi.org/10.1007/978-3-031-09520-7_4

Download citation

  • DOI: https://doi.org/10.1007/978-3-031-09520-7_4

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-031-09519-1

  • Online ISBN: 978-3-031-09520-7

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics

Navigation