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Public support for patients with intractable diseases in Japan: impact on clinical indicators from nationwide registries in patients with autosomal dominant polycystic kidney disease
BackgroundClinical practice guidelines recommend antihypertensive and tolvaptan therapies for patients with autosomal dominant polycystic kidney...
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Transatlantic registries for minimally invasive liver surgery: towards harmonization
BackgroundSeveral registries focus on patients undergoing minimally invasive liver surgery (MILS). This study compared transatlantic registries...
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The importance of pregnancy registries for the management of women with epilepsy and childbearing potential: Emphasis on EURAP
In light of the increased awareness of the teratogenic risks with older-generation antiseizure medications (ASMs) and the introduction of many new...
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Ethnic disparities in breast cancer patterns in Brazil: examining findings from population-based registries
PurposeTo investigate breast cancer (BC) incidence and mortality rates among specific racial groups in Brazil.
MethodsBC incidence was evaluated...
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Social Phenoty** for Cardiovascular Risk Stratification in Electronic Health Registries
Purpose of ReviewEvaluation of social influences on cardiovascular care requires a comprehensive analysis encompassing economic, societal, and...
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International cooperation needed to improve national anterior cruciate ligament registries
PurposeThe aim of this study is to illustrate an overview of the registries currently operative in many countries to support the introduction of new...
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Commonalities and differences in set-up and data collection across European spondyloarthritis registries — results from the EuroSpA collaboration
BackgroundIn European axial spondyloarthritis (axSpA) and psoriatic arthritis (PsA) clinical registries, we aimed to investigate commonalities and...
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Insight into prevalence, etiology, and modalities of pediatric chronic dialysis: a comprehensive nationwide analysis
BackgroundThis study aimed to determine the prevalence and etiology of kidney failure (KF) among children below 15 years of age receiving chronic...
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Concepts, utilization, and perspectives on the Dutch Nationwide Trauma registry: a position paper
Over the last decades, the Dutch trauma care have seen major improvements. To assess the performance of the Dutch trauma system, in 2007, the Dutch...
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Sex differences in infective endocarditis: a Danish nationwide study
PurposeSex differences in infective endocarditis (IE) are reported, but patient characteristics are sparse and conflicting findings on the...
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The role of big data management, data registries, and machine learning algorithms for optimizing safe definitive surgery in trauma: a review
Digital data processing has revolutionized medical documentation and enabled the aggregation of patient data across hospitals. Initiatives such as...
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Safety outcomes in patients with rheumatoid arthritis treated with abatacept: results from a multinational surveillance study across seven European registries
BackgroundPatients with rheumatoid arthritis (RA) have an increased risk of infection and malignancy compared with the general population. Infection...
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Building a patient-centred nationwide integrated cardiac care registry: intermediate results from the Netherlands
This paper presents an overview of the development of an integrated patient-centred cardiac care registry spanning the initial 5 years (September...
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Outcomes After Major Surgical Procedures in Octogenarians: A Nationwide Cohort Study
IntroductionAging of the worldwide population has been observed, and postoperative outcomes could be worse in elderly patients. This nationwide study...
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Applicability of STOPP/START prescribing criteria in integrated Swedish administrative health registries and a Swedish population-based cohort
PurposeThe STOPP/START criteria are frequently applied in observational studies to assess potentially inappropriate prescribing in older adults. This...
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Data-driven development of the nationwide hip fracture registry in the Netherlands
SummaryAdditional variables for a nationwide hip fracture registry must be carefully chosen to prevent unnecessary registry load. A registry pilot in...
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Opportunities and obstacles in linking large health care registries: the primary secondary cancer care registry - breast cancer
BackgroundThe growing volume of health data provides new opportunities for medical research. By using existing registries, large populations can be...
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Incidence of depression in patients with cardiovascular disease and type 2 diabetes: a nationwide cohort study
BackgroundEstimating how type 2 diabetes (T2D) affects the rate of depression in cardiovascular disease (CVD) can help identify high-risk patients....
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Surgical treatment of patients with infective endocarditis: changes in temporal use, patient characteristics, and mortality—a nationwide study
BackgroundValve surgery guidelines for infective endocarditis (IE) are unchanged over decades and nationwide data about the use of valve surgery do...
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Comparison of revision rates and epidemiological data of a single total knee arthroplasty system of different designs (cruciate retaining, posterior stabilized, mobile bearing, and fixed bearing): a meta-analysis and systematic review of clinical trials and national arthroplasty registries
BackgroundThis study aimed to meta-analyze epidemiological data, revision rates, and incidences of different designs of a single Total Knee...
