7 Result(s)

Article

Qualitative Exploration of the Visual Function Impairments and Health-Related Quality of Life Impacts of Amblyopia in Adult and Pediatric Populations

Amblyopia is a reduction in vision in one or both eyes due to impaired development of the visual pathway. This study explored the experience of amblyopia and treatment from the patient, caregiver, and clinicia...

Sharan Randhawa, Natasha Griffiths, Paul O’Brien… in Ophthalmology and Therapy (2023)

Article

The Amblyopia Quality of Life (AmbQoL): Development and Content Validation of a Novel Health-Related Quality of Life Instrument for Use in Adult and Pediatric Amblyopia Populations

Amblyopia is a neurodevelopmental vision disorder, characterized by poor vision in one or both eyes. Given the lack of existing clinical outcome assessments (COA) considered fit-for-purpose for amblyopia clini...

Ann Webber, Sharan Randhawa, Federico Felizzi, Mercedesz Soos… in Ophthalmology and Therapy (2023)

Article

The endometriosis daily diary: qualitative research to explore the patient experience of endometriosis and inform the development of a patient-reported outcome (PRO) for endometriosis-related pain

Endometriosis is a chronic disorder of the female reproductive system characterized by debilitating symptoms, particularly endometriosis-related pain (ERP). Patient-reported outcome (PRO) measures of symptoms ...

Yanfen Guan, Allison M. Nguyen, Samantha Wratten… in Journal of Patient-Reported Outcomes (2022)

Article

Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

Tina Duong, Jessica Braid, Hannah Staunton, Aurelie Barriere… in BMC Neurology (2021)

Article

Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

The 32-item Motor Function Measure (MFM32) is a clinician-reported outcome measure used to assess the functional abilities of individuals with neuromuscular diseases, including those with spinal muscular atrop...

Tina Duong, Jessica Braid, Hannah Staunton, Aurelie Barriere… in BMC Neurology (2021)

Article

Content validity of patient-reported outcomes for use in lower-risk myelodysplastic syndromes

The lower-risk (low and intermediate-1 risk based on IPSS) myelodysplastic syndrome (MDS) has a negative impact on patients’ health-related quality of life (HRQoL). Patient Reported Outcomes (PROs) instruments...

Jeremiah J. Trudeau, Jianming He, Esther Rose… in Journal of Patient-Reported Outcomes (2020)