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    Article

    Methodological innovations and stakeholder involvement in core outcome sets for skin diseases: a survey of the C3 working groups

    Areeba Ahmed, Eric Koza, Victoria Shi, Melissa Ma in Archives of Dermatological Research (2024)

  2. No Access

    Article

    Clinical relevance and uptake of core outcome sets in dermatology

    Areeba Ahmed, Eric Koza, Victoria Shi, Melissa Ma in Archives of Dermatological Research (2024)

  3. Article

    Open Access

    Primary SARS-CoV-2 infection in patients with immune-mediated inflammatory diseases: long-term humoral immune responses and effects on disease activity

    Patients with immune-mediated inflammatory diseases (IMIDs) on immunosuppressants (ISPs) may have impaired long-term humoral immune responses and increased disease activity after SARS-CoV-2 infection. We aimed...

    Koos P. J. van Dam, Adriaan G. Volkers, Luuk Wieske in BMC Infectious Diseases (2023)

  4. Article

    Open Access

    Risk factors associated with short-term adverse events after SARS-CoV-2 vaccination in patients with immune-mediated inflammatory diseases

    Studies have suggested incremental short-term adverse events (AE) after repeated vaccination. In this report, we assessed occurrence and risk factors for short-term AEs following repeated SARS-CoV-2 vaccinatio...

    Luuk Wieske, Laura Y. L. Kummer, Koos P. J. van Dam, Eileen W. Stalman in BMC Medicine (2022)

  5. Article

    Open Access

    Neurological signs, symptoms and MRI abnormalities in patients with congenital melanocytic naevi and evaluation of routine MRI-screening: systematic review and meta-analysis

    A congenital melanocytic naevus (CMN) is a rare skin condition that can be associated with abnormalities of the central nervous system (CNS). These anomalies can sometimes cause severe complications, and rarel...

    Anne C. Fledderus, Anna Linn Widdershoven, Oren Lapid in Orphanet Journal of Rare Diseases (2022)

  6. No Access

    Article

    Patient-Reported Burden of Adverse Drug Reactions Attributed to Biologics Used for Immune-Mediated Inflammatory Diseases

    Although the burden of adverse drug reactions (ADRs) has a significant impact on patients’ quality of life, thorough knowledge about patients’ perspectives on the burden of ADRs attributed to biologics is lack...

    Jette A. van Lint, Naomi T. Jessurun, Renske C. F. Hebing, Frank Hoentjen in Drug Safety (2020)

  7. Article

    Open Access

    Outcome measurement instruments for peripheral vascular malformations and an assessment of the measurement properties: a systematic review

    The Outcome measures for vascular malformation (OVAMA) group reached consensus on the core outcome domains for the core outcome set (COS) for peripheral vascular malformations (venous, lymphatic and arterioven...

    Sophie E. R. Horbach, Amber P. M. Rongen, Roy G. Elbers in Quality of Life Research (2020)

  8. Article

    Open Access

    TREatment of ATopic eczema (TREAT) Registry Taskforce: protocol for an international Delphi exercise to identify a core set of domains and domain items for national atopic eczema registries

    Patients with moderate-to-severe atopic eczema (AE) often require photo- or systemic immunomodulatory therapies to induce disease remission and maintain long-term control. The current evidence to guide clinica...

    Louise A. A. Gerbens, Aaron E. Boyce, Dmitri Wall, Sebastien Barbarot in Trials (2017)

  9. Article

    Open Access

    Achieving consensus over the assessment of clinical signs in eczema trials

    Kim S Thomas, Jochen Schmitt, Phyllis I Spuls, Eric Simpson, Masutaka Furue in Trials (2015)

  10. Article

    Open Access

    The efficacy of a health-related quality-of-life intervention during 48 weeks of biologic treatment of patients with moderate to severe psoriasis: study protocol for a multicenter randomized controlled trial

    Interest in health-related quality of life (HRQoL) outcome research in dermatology is increasing, especially in the systemic treatment of psoriasis with biologic agents. In other specialties, such as oncology,...

    Cecilia AC Prinsen, Phyllis I Spuls, Mirjam AG Sprangers, Menno A de Rie in Trials (2012)