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Article
Can prediction models for hospital readmission be improved by incorporating patient-reported outcome measures? A systematic review and narrative synthesis
To investigate the roles, challenges, and implications of using patient-reported outcome measures (PROMs) in predicting the risk of hospital readmissions.
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Article
A sco** review of triage approaches for the referral of patients with suspected inflammatory arthritis, from primary to rheumatology care
We aimed to (1) identify existing triage approaches for referral of patients with suspected inflammatory arthritis (IA) from primary care physicians (PCP) to rheumatologists, (2) describe their characteristics...
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Article
Open AccessQuality of life of the Canadian population using the VR-12: population norms for health utility values, summary component scores and domain scores
To estimate Canadian population norms (health utility values, summary component scores and domain scores) for the VR-12.
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Article
Open AccessUsing a patient-centred composite endpoint in a secondary analysis of the Control of Hypertension in Pregnancy Study (CHIPS) Trial
Clinical trials commonly use multiple endpoints to measure the impact of an intervention. While this improves the comprehensiveness of outcomes, it can make trial results difficult to interpret. We examined th...
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Article
Open AccessPatient perspectives on the British Columbia Biosimilars Initiative: a qualitative descriptive study
In May 2019, the Government of British Columbia (BC) announced the implementation of the Biosimilars Initiative, mandating the switch of biologic (originator) drugs to biosimilars for certain patient populatio...
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Article
Open AccessAdaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients
Patient decision aids (PtDAs) enable shared decision-making between patients and healthcare providers. Adaptations to PtDAs for use with populations facing inequities in healthcare can improve the relevancy of...
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Article
Open AccessCo-production of randomized clinical trials with patients: a case study in autologous hematopoietic stem cell transplant for patients with scleroderma
Increasingly, it is argued that clinical trials struggle to recruit participants because they do not respond to key questions or study treatments that patients will be willing or able to use. This study explor...
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Article
Designing Discrete Choice Experiments Using a Patient-Oriented Approach
Patient-oriented research is a process whereby patients or caregivers are included as research partners so that research focusses on topics that are priorities and lead to findings that translate into practice...
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Article
Open Access“Walking into the unknown…” key challenges of pregnancy and early parenting with inflammatory arthritis: a systematic review and thematic synthesis of qualitative studies
To conduct a systematic review and thematic synthesis of qualitative studies on the pregnancy and early parenting experiences of patients with inflammatory arthritis (IA).
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Article
Open AccessComparing the use of aggregate data and various methods of integrating individual patient data to network meta-analysis and its application to first-line ART
The 2018 World Health Organization HIV guidelines were based on the results of a network meta-analysis (NMA) of published trials. This study employed individual patient-level data (IPD) and aggregate data (AgD...
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Article
Open AccessWhen does the use of individual patient data in network meta-analysis make a difference? A simulation study
The use of individual patient data (IPD) in network meta-analyses (NMA) is rapidly growing. This study aimed to determine, through simulations, the impact of select factors on the validity and precision of NMA...
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Article
Patient-provider communication about medication cost in rheumatoid arthritis
To examine the perceived importance and frequency with which out-of-pocket medication costs are discussed between rheumatologists and patients with rheumatoid arthritis (RA) in Canada.
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Article
Open AccessRespondent Understanding in Discrete Choice Experiments: A Sco** Review
Despite the recognised importance of participant understanding for valid and reliable discrete choice experiment (DCE) results, there has been limited assessment of whether, and how, people understand DCEs, an...
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Article
Patient-Oriented Research from the ISDM 2019 Conference: A Legacy Now More Relevant Than Ever
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Article
Preferences for treatments to prevent rheumatoid arthritis in Canada and the influence of shared decision-making
To elicit and compare preferences of patients and first-degree relatives and rheumatologists for preventive treatments for rheumatoid arthritis, understand the influence of shared decision-making, and predict ...
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Article
Support Tools for Preference-Sensitive Decisions in Healthcare: Where Are We? Where Do We Go? How Do We Get There?
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Article
Open AccessDevelopment and usability testing of a patient decision aid for newly diagnosed relapsing multiple sclerosis patients
Multiple sclerosis (MS) patients often struggle with treatment decisions, in part due to the increasing number of approved disease modifying therapies, each with different characteristics, and also since physi...
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Article
Open AccessAn individualized patient-reported outcome measure (PROM) based patient decision aid and surgeon report for patients considering total knee arthroplasty: protocol for a pragmatic randomized controlled trial
While the rates of total knee arthroplasty (TKA) continue to rise worldwide, there are concerns about whether all surgeries are appropriate. Guidelines for appropriateness suggest that patients should have rea...
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Article
Assessing an Interactive Online Tool to Support Parents’ Genomic Testing Decisions
Clinical use of genome-wide sequencing (GWS) requires pre-test genetic counseling, but the availability of genetic counseling is limited. We developed an interactive online decision-support tool, DECIDE, to ma...
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Article
Open AccessRecognizing difficult trade-offs: values and treatment preferences for end-of-life care in a multi-site survey of adult patients in family practices
Decisions about care options and the use of life-sustaining treatments should be informed by a person’s values and treatment preferences. The objective of this study was to examine the consistency of ratings o...
