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Article
Survivorship concerns among individuals diagnosed with metastatic cancer: Findings from the Cancer Experience Registry
Individuals with metastatic cancer experience many medical, physical, and emotional challenges due to changing medical regimens, oscillating disease states, and side effects. The purpose of this study was to d...
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Article
HIV Support Source: Development of a Distress Screening Measure for Adults with HIV
To provide an effective, multidimensional, and psychometrically valid measure to screen for distress among people with HIV, we developed and assessed the psychometric properties of HIV Support Source, a distre...
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Article
Financial toxicity among people with metastatic cancer: findings from the Cancer Experience Registry
This study describes financial toxicity (FT) reported by people with metastatic cancer, characteristics associated with FT, and associations between FT and compensatory strategies to offset costs.
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Article
The psychometric properties of a caregiving-related strain scale in oncology
Caregivers are rarely assessed for caregiving-related strain. This study explored the psychometric properties of the caregiving-related physical, emotional, and financial strain questions in the National Allia...
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Article
Open AccessCancerSupportSource®-15+: development and evaluation of a short form of a distress screening program for cancer patients and survivors
CancerSupportSource® (CSS) is a distress screening program implemented at community-based organizations and hospitals nationwide. The 25-item CSS assesses distress across five domains, with capacity to screen ...
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Article
Racial and ethnic variations in caregiving-related physical, emotional, and financial strain during COVID-19 among those caring for adult cancer patients
Cancer caregiving is shown to be a burdensome experience in typical times. The purpose of this study was to describe cancer caregivers’ emotional, physical, and financial strain during the COVID-19 pandemic an...
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Article
Open AccessCancerSupportSource®: validation of a revised multi-dimensional distress screening program for cancer patients and survivors
To facilitate access to and provision of psychosocial care to cancer patients in the community, the Cancer Support Community (CSC) developed CancerSupportSource® (CSS), an evidence-based psychosocial distress ...
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Article
Discriminatory power of a 25-item distress screening tool: a cross-sectional survey of 251 cancer survivors
The objective was to test the discriminatory power of a 25-item distress screening tool for use among cancer survivors. We used a measure of item discrimination to determine which items perform better than ot...
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Article
Open AccessNeonatal erythropoiesis and subsequent anemia in HIV-positive and HIV-negative Zimbabwean babies during the first year of life: a longitudinal study
Anemia is common in HIV infection and independently associated with disease progression and mortality. The pathophysiology of HIV-related anemia is not well understood especially in infancy.
