-
Article
Open AccessGuideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024
Although comprehensive and widespread guidelines on how to conduct systematic reviews of outcome measurement instruments (OMIs) exist, for example from the COSMIN (COnsensus-based Standards for the selection o...
-
Article
Open AccessGuideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024
Although comprehensive and widespread guidelines on how to conduct systematic reviews of outcome measurement instruments (OMIs) exist, for example from the COSMIN (COnsensus-based Standards for the selection o...
-
Article
Open AccessGuideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 2024
Although comprehensive and widespread guidelines on how to conduct systematic reviews of outcome measurement instruments (OMIs) exist, for example from the COSMIN (COnsensus-based Standards for the selection o...
-
Article
Open AccessPatient and Public Perceptions in Canada About Decentralized and Hybrid Clinical Trials: “It’s About Time we Bring Trials to People”
Little is known about patient and the public perspectives on decentralized and hybrid clinical trials in Canada.
-
Article
Open AccessCo-production of a systematic review on decision coaching: a mixed methods case study within a review
Co-production is a collaborative approach to prepare, plan, conduct, and apply research with those who will use or be impacted by research (knowledge users). Our team of knowledge users and researchers sought ...
-
Article
Open AccessA blueprint for patient and public involvement in the development of a reporting guideline for systematic reviews of outcome measurement instruments: PRISMA-COSMIN for OMIs 2024
In recent years, projects to develop reporting guidelines have attempted to integrate the perspectives of patients and public members. Best practices for patient and public involvement (PPI) in such projects h...
-
Article
Open AccessOne size doesn’t fit all: methodological reflections in conducting community-based behavioural science research to tailor COVID-19 vaccination initiatives for public health priority populations
Promoting the uptake of vaccination for infectious diseases such as COVID-19 remains a global challenge, necessitating collaborative efforts between public health units (PHUs) and communities. Applied behaviou...
-
Article
Open AccessEvaluation of an integrated knowledge translation approach used for updating the Cochrane Review of Patient Decision Aids: a pre-post mixed methods study
When people who can use or benefit from research findings are engaged as partners on study teams, the quality and impact of findings are better. These people can include patients/consumers and clinicians who d...
-
Article
Open AccessGuidelines for reporting pediatric and child health clinical trial protocols and reports: study protocol for SPIRIT-Children and CONSORT-Children
Despite the critical importance of clinical trials to provide evidence about the effects of intervention for children and youth, a paucity of published high-quality pediatric clinical trials persists. Sub-opti...
-
Chapter and Conference Paper
Patient and Clinician Perspectives on Collaborative Work in the Emergency Department
Older adults who present to the emergency department (ED) sometimes have a negative patient experience. Collaboration between care partners, patients and ED staff is one way to improve the patient experience i...
-
Article
Open AccessYouth and family involvement in the development of a plain language trial results communication tool: CommuniKIDS
Pediatric trials are possible through voluntary participation of children, youth (age ≤ 18 years), and their families. Despite important arguments for trialists to provide trial progress or results, and eviden...
-
Article
Open AccessRecognizing patient partner contributions to health research: a systematic review of reported practices
Patient engagement in research refers to collaboration between researchers and patients (i.e., individuals with lived experience including informal caregivers) in develo** or conducting research. Offering no...
-
Article
Open AccessEthical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research
The collection and use of patient reported outcomes (PROs) in care-based child health research raises challenging ethical and logistical questions. This paper offers an analysis of two questions related to PRO...
-
Article
Open AccessPositioning patients to partner: exploring ways to better integrate patient involvement in the learning health systems
Globally, health systems are increasingly striving to deliver evidence based care that improves patients’, caregivers’ and communities’ health outcomes. To deliver this care, more systems are engaging these gr...
-
Article
Open AccessPrediction of rehospitalization and mortality risks for skilled nursing facilities using a dimension reduction approach
Hospitals are incentivized to reduce rehospitalization rates, creating an emphasis on skilled nursing facilities (SNFs) for post-hospital discharge. How rehospitalization rates vary depending on patient and SN...
-
Article
Open AccessTowards the international interoperability of clinical research networks for rare diseases: recommendations from the IRDiRC Task Force
Many patients with rare diseases are still lacking a timely diagnosis and approved therapies for their condition despite the tremendous efforts of the research community, biopharmaceutical, medical device indu...
-
Article
Open AccessUse telehealth as needed: telehealth substitutes in-person primary care and associates with the changes in unplanned events and follow-up visits
Telehealth rapidly expanded since the outbreak of the COVID-19 pandemic. This study aims to understand how telehealth can substitute in-person services by 1) estimating the changes in non-COVID emergency depar...
-
Article
Open AccessSharing space at the research table: exploring public and patient involvement in a methodology priority setting partnership
Public and patient involvement aims to improve research quality, relevance, and appropriateness. Despite an increasing evidence base on the influence of public involvement in health research, the role of invol...
-
Article
Open AccessAuthor Correction: Short- and long-range interactions in the HIV-1 5′ UTR regulate genome dimerization and packaging
-
Article
Open AccessUnderstanding how and under what circumstances decision coaching works for people making healthcare decisions: a realist review
Decision coaching is non-directive support delivered by a trained healthcare provider to help people prepare to actively participate in making healthcare decisions. This study aimed to understand how and under...
