5 Result(s)
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Maui Hudson
Biomedicine
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Article
Advancing diagnosis and research for rare genetic diseases in Indigenous peoples
Achieving a diagnosis for Indigenous people living with a rare, often genetic, disease is crucial for equitable healthcare. The International Rare Disease Research Consortium convened a global Task Force to br...
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Article
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experie...
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Article
Correction to: Native Hawaiian Views on Biobanking
The original version of this article unfortunately contained a mistake. The name of “Maile Taualii” is now corrected in the author group of this article.
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Article
Open AccessViews on clinical trial recruitment, biospecimen collection, and cancer research: population science from landscapes of the Haudenosaunee (People of the Longhouse)
Biomedical research in culturally distinct communities is often a challenge. Potential barriers to participation occur because science is presented in a format that lacks cultural acknowledgement. Investigatio...
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Article
Native Hawaiian Views on Biobanking
Genomic science represents a new frontier for health research and will provide important tools for personalizing health care. Biospecimen-based research is an important mechanism for expanding the genomic rese...
