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Open AccessCompeting interests: digital health and indigenous data sovereignty
Digital health is increasingly promoting open health data. Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peop...
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Open AccessIdentifying Māori perspectives on gene editing in Aotearoa New Zealand
Māori perspectives on gene technologies are evolving, and traditional cultural constructs continue to inform a wide diversity of views. Here we summarise a series of research activities aimed at identifying ev...
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Article
Advancing diagnosis and research for rare genetic diseases in Indigenous peoples
Achieving a diagnosis for Indigenous people living with a rare, often genetic, disease is crucial for equitable healthcare. The International Rare Disease Research Consortium convened a global Task Force to br...
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Applying the ‘CARE Principles for Indigenous Data Governance’ to ecology and biodiversity research
Indigenous Peoples are increasingly being sought out for research partnerships that incorporate Indigenous Knowledges into ecology research. In such research partnerships, it is essential that Indigenous data ...
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Open AccessOperationalizing the CARE and FAIR Principles for Indigenous data futures
As big data, open data, and open science advance to increase access to complex and large datasets for innovation, discovery, and decision-making, Indigenous Peoples’ rights to control and access their data wit...
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Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experie...
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Correction to: Native Hawaiian Views on Biobanking
The original version of this article unfortunately contained a mistake. The name of “Maile Taualii” is now corrected in the author group of this article.
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Open AccessHe Pikinga Waiora: supporting Māori health organisations to respond to pre-diabetes
Type 2 Diabetes (T2D) is a common long-term condition affecting the health and wellbeing of New Zealanders; one in every four New Zealanders is pre-diabetic. Māori, the Indigenous people of New Zealand, are at...
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Open AccessViews on clinical trial recruitment, biospecimen collection, and cancer research: population science from landscapes of the Haudenosaunee (People of the Longhouse)
Biomedical research in culturally distinct communities is often a challenge. Potential barriers to participation occur because science is presented in a format that lacks cultural acknowledgement. Investigatio...
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Open AccessImplementation framework for chronic disease intervention effectiveness in Māori and other indigenous communities
About 40% of all health burden in New Zealand is due to cancer, cardiovascular disease, and type 2 diabetes/obesity. Outcomes for Māori (indigenous people) are significantly worse than non-Maori; these inequit...
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Native Hawaiian Views on Biobanking
Genomic science represents a new frontier for health research and will provide important tools for personalizing health care. Biospecimen-based research is an important mechanism for expanding the genomic rese...
