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Article
Parental Preferences for Primary and Specialty Care Collaboration in the Management of Teens with Congenital Heart Disease
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Article
A Severity of Illness Index and Health-Related Quality of Life for Teens with Congenital Heart Disease
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Article
Validity of the health-related quality of life assessment in the ADORE study: Parent Report Form of the CHIP-Child Edition
To examine the cross-sectional reliability and validity of the Parent Report Form of the Child Health and Illness Profile-Child Edition (CHIP-CE), a generic measure of health-related quality of life (HRQoL), i...
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Article
Open AccessHealth services research doctoral core competencies
This manuscript presents an initial description of doctoral level core competencies for health services research (HSR). The competencies were developed by a review of the literature, text analysis of instituti...
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Article
Open AccessRoutine care provided by specialists to children and adolescents in the United States (2002-2006)
Specialist physicians provide a large share of outpatient health care for children and adolescents in the United States, but little is known about the nature and content of these services in the ambulatory set...
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Article
Open AccessReliability and validity of the Spanish version of the Child Health and Illness Profile (CHIP) Child-Edition, Parent Report Form (CHIP-CE/PRF)
The objectives of the study were to assess the reliability, and the content, construct, and convergent validity of the Spanish version of the CHIP-CE/PRF, to analyze parent-child agreement, and compare the res...
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Article
Open AccessDevelopment of the Healthy Pathways Child-Report Scales
The Child Health and Illness Profile (CHIP) has separate child (6–11 years) and adolescent (12–21 years) editions that measure youth’s self-assessed health, illness, and well-being. The purpose of this study w...
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Article
Open AccessPerformance measures of the specialty referral process: a systematic review of the literature
Performance of specialty referrals is coming under scrutiny, but a lack of identifiable measures impedes measurement efforts. The objective of this study was to systematically review the literature to identify...
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Article
Open AccessEarly identification of young children at risk for poor academic achievement: preliminary development of a parent-report prediction tool
Early school success is clearly related to later health. A prediction index that uses parent report to assess children's risk for poor academic achievement could potentially direct targeted service delivery to...
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Article
Factors Promoting or Potentially Impeding School Success: Disparities and State Variations for Children with Special Health Care Needs
School success predicts many pathways for health and well-being across the life span. Factors promoting or potentially impeding school success are critical to understand for all children and for children with ...
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Article
Reliability and validity of the Spanish version of the Child Health and Illness Profile Child-Edition/Child Report Form (CHIP-CE/CRF)
To assess the reliability and validity of the Spanish version of the CHIP-CE/CRF.
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Article
Development of the Healthy Pathways Parent-Report Scales
To describe the development of the Healthy Pathways Parent-Report Scales, measures of health, illness, well-being, and achievement among youth in middle childhood and adolescence.
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Article
A Family Psychosocial Risk Questionnaire for Use in Pediatric Practice
The objective of this study is to develop new methods to better identify psychosocial risk such that children with the greatest risk of poor future outcomes receive more intensive preventive health services. B...
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Article
Open AccessThe case for an international patient-reported outcomes measurement information system (PROMIS®) initiative
Patient-reported outcomes (PROs) play an increasingly important role in clinical practice and research. Modern psychometric methods such as item response theory (IRT) enable the creation of item banks that sup...
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Reference Work Entry In depth
Healthy Pathways Child Report Scales
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Reference Work Entry In depth
Healthy Pathways Parent Report Scales
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Article
Development of the PROMIS® pediatric global health (PGH-7) measure
To develop a practical, efficient, and reliable pediatric global health (PGH) measure that would be useful for clinical, quality improvement, and research applications.
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Article
Concept Analysis of the Patient Reported Outcomes Measurement Information System (PROMIS®) and the International Classification of Functioning, Disability and Health (ICF)
The Patient Reported Outcomes Measurement Information System (PROMIS ® ) is a US National Institutes of Health initiative that has produced self-report outcome measures, usin...
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Article
Map** the content of the Patient-Reported Outcomes Measurement Information System (PROMIS®) using the International Classification of Functioning, Health and Disability
The Patient-Reported Outcomes Measurement Information System (PROMIS ® ) is a US National Institutes of Health initiative that has produced self-reported item banks for phys...
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Article
Open AccessThe impact of primary care on emergency department presentation and hospital admission with pneumonia: a case–control study of preschool-aged children
In children, community-acquired pneumonia is a frequent cause of emergency department (ED) presentation and hospital admission. Quality primary care may prevent some of these hospital visits.