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Article
A Framework to Promote Implementation of Patient-Reported Outcomes in Institutions Caring for Vulnerable and Underserved Cancer Populations
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Article
Open AccessPrioritization of ethical concerns regarding HIV molecular epidemiology by public health practitioners and researchers
HIV molecular epidemiology (HIV ME) can support the early detection of emerging clusters of new HIV infections by combining HIV sequence data routinely obtained during the clinical treatment of people living w...
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Article
Open AccessRethinking Patient Engagement in Cancer Research
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Open AccessBest–Worst Scaling and the Prioritization of Objects in Health: A Systematic Review
Best–worst scaling is a theory-driven method that can be used to prioritize objects in health. We sought to characterize all studies of best–worst scaling to prioritize objects in health, to assess trends of u...
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Article
Unmet Therapeutic Needs of Non-Ambulatory Patients with Duchenne Muscular Dystrophy: A Mixed-Method Analysis
Duchenne muscular dystrophy has been a launching pad for patient-focused drug development (PFDD). Yet, PFDD efforts have largely neglected non-ambulatory patients. To support PFDD efforts in this population, w...
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Article
Open AccessA review of paper-based advance care planning aids
Advance care planning (ACP) aids can help prepare patients, family members, and physicians for in-the-moment medical decision-making. We wished to describe the content and approach of paper-based ACP aids in o...
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Article
An Environmental Scan of Advance Care Planning Decision Aids for Patients Undergoing Major Surgery: A Study Protocol
Patients who undergo major surgery are at risk for perioperative morbidity and mortality. It would be appropriate to initiate advance care planning with patients prior to surgery, but surgeons may experience d...