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Article
Age-related differences in employment, insurance, and financial hardship among colorectal cancer patients: a report from the ColoCare Study
Employment and financial hardships are common issues for working-age colorectal cancer patients. We surveyed colorectal cancer survivors to investigate employment, insurance, and financial outcomes by age at d...
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Article
Risk factors and health behaviors associated with loneliness among cancer survivors during the COVID-19 pandemic
Loneliness may exacerbate poor health outcomes particularly among cancer survivors during the COVID-19 pandemic. Little is known about the risk factors of loneliness among cancer survivors. We evaluated the ri...
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Article
Material financial hardship and insurance-related experiences among Utah’s rural and urban cancer survivors
Describe material financial hardship (e.g., using savings, credit card debt), insurance, and access to care experienced by Utah cancer survivors; investigate urban–rural differences in financial hardship.
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Article
Research-practice partnership: supporting rural cancer survivors in Montana
The objective of this Research-Practice Partnership was to disseminate and implement strategies to assist Community Health Centers in improving the care of rural cancer survivors in Montana. Funded by the Nati...
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Article
Financial burdens during the COVID-19 pandemic are related to disrupted healthcare utilization among survivors of adolescent and young adult cancers
We examined whether financial burdens occurring during the COVID-19 pandemic impacted healthcare utilization among survivors of adolescent and young adult cancers.
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Article
Open AccessVaccination practices of pediatric oncologists from eight states
Vaccinations are a vital part of routine childhood and adolescent preventive care. We sought to identify current oncology provider practices, barriers, and attitudes towards vaccinating childhood and adolescen...
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Article
Challenges and Opportunities of Epidemiological Studies to Reduce the Burden of Cancers in Young Adults
There are >1.9 million survivors of adolescent and young adult cancers (AYA, diagnosed at ages 15–39) living in the U.S. today. Epidemiologic studies to address the cancer burden in this group have been a rela...
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Article
Cancer survivors’ financial hardship and their caregivers’ employment: results from a statewide survey
Many caregivers take paid and/or unpaid time off work, change from full-time to part-time, or leave the workforce. We hypothesized that cancer survivor-reported material hardship (e.g., loans, bankruptcy), beh...
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Article
Implementation barriers and considerations for recommending and administering the human papillomavirus (HPV) vaccination in oncology settings
Survivors of childhood and adolescent cancer experience low human papillomavirus (HPV) vaccination rates—a crucial form of cancer prevention. Oncology provider recommendations may increase young survivors HPV ...
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Article
Drivers of COVID-19 Vaccine Intent Among Survivors of Adolescent and Young Adult Cancer: a Mixed Method Study
Survivors of adolescent and young adult (AYA) cancer are susceptible to severe COVID-19 outcomes due to their cancer history. Drivers of COVID-19 vaccine hesitancy and willingness are largely unexplored among ...
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Article
Cancer survivorship experiences in Utah: an evaluation assessing indicators of survivors’ quality of life, health behaviors, and access to health services
The 2016–2020 Utah Comprehensive Cancer Prevention and Control Plan prioritized strategies to address cancer survivorship experiences. In this paper we present estimates for nine indicators evaluating these pr...
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Article
Sources of informal financial support among adolescent and young adult cancer survivors: a mixed methods analysis from the HIAYA CHAT study
The purpose of this exploratory sequential mixed methods study was to describe the sources of informal financial support used by adolescent and young adult (AYA) cancer survivors and how financial toxicity and...
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Article
HPV Vaccine Experiences and Preferences Among Young Adult Cancer Survivors and Caregivers of Childhood Cancer Survivors
Cancer survivors are at higher risk of develo** HPV-associated cancers later in life, yet their HPV vaccination rates remain lower than the general population. Improving HPV vaccination uptake among survivor...
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Article
Open AccessHIAYA CHAT study protocol: a randomized controlled trial of a health insurance education intervention for newly diagnosed adolescent and young adult cancer patients
For adolescent and young adult (AYA) cancer patients aged 18 to 39 years, health insurance literacy is crucial for an effective use of the health care system. AYAs often face high out-of-pocket costs or have u...
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Article
Factors associated with changes in exercise behaviors during the COVID-19 pandemic
There is limited information on how the COVID-19 pandemic has changed health behaviors among cancer patients. We examined changes in exercise behaviors since the pandemic and identified characteristics associa...
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Article
“I thought there would be more I understood”: health insurance literacy among adolescent and young adult cancer survivors
Health insurance literacy is crucial for navigating the US healthcare system. Low health insurance literacy may be especially concerning for adolescent and young adult (AYA) cancer survivors. To describe AYAs’...
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Article
Social support enactments on social media during the first 6 months of young adult cancer caregiving
To explore how family/friend young adult cancer caregivers (YACC) used social media for social support in a cross-sectional retrospective mixed-methods study.
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Article
Open AccessPerceptions and knowledge of air pollution and its health effects among caregivers of childhood cancer survivors: a qualitative study
Emerging research suggests that survivors of childhood and adolescent cancers are at risk for morbidity and mortality associated with air pollutants. However, caregiver perceptions of the effects of air pollut...
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Article
Healthcare provider perspectives on pediatric cancer survivorship care plans: a single institution pilot study
Survivorship care plans (SCPs) are used to facilitate communication between oncology and primary care providers (PCPs) after cancer treatment and to assist cancer survivors with healthcare decisions. We evalua...
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Article
Influence of provider recommendations to restart vaccines after childhood cancer on caregiver intention to vaccinate
We studied the influence of oncology and primary care provider (PCP) recommendations on caregiver intentions to restart vaccines (e.g., catch-up or boosters) after cancer treatment.
