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  1. Article

    Open Access

    Variations in attitudes towards stereotactic biopsy of adult diffuse midline glioma patients: a survey of members of the AANS/CNS Tumor Section

    Diffuse midline gliomas are rare midline CNS malignancies that primarily affect children but can also affect adults. While radiation is standard treatment, prognosis remains fatal. Furthermore, due to its sens...

    John Lynes, Alvina A. Acquaye, Hannah Sur, Anthony Nwankwo in Journal of Neuro-Oncology (2020)

  2. Article

    Open Access

    Identifying symptom recurrences in primary brain tumor patients using the MDASI-BT and qualitative interviews

    Identifying symptoms experienced throughout the disease trajectory is pivotal to understanding management of patient symptoms. Patient interviews to solicit input from those who have experienced these symptoms...

    Alvina A. Acquaye, Samuel S. Payén, Elizabeth Vera in Journal of Patient-Reported Outcomes (2019)

  3. No Access

    Article

    Significant predictors of patients’ uncertainty in primary brain tumors

    Patients with primary brain tumors (PBT) face uncertainty related to prognosis, symptoms and treatment response and toxicity. Uncertainty is correlated to negative mood states and symptom severity and interfe...

    Lin Lin, Lung-Chang Chien, Alvina A. Acquaye in Journal of Neuro-Oncology (2015)

  4. No Access

    Article

    Validation of the Mishel’s uncertainty in illness scale-brain tumor form (MUIS-BT)

    The Mishel uncertainty in illness scale (MUIS) has been used extensively with other solid tumors throughout the continuum of illness. Interventions to manage uncertainty have been shown to improve mood and sym...

    Lin Lin, Alvina A. Acquaye, Elizabeth Vera-Bolanos in Journal of Neuro-Oncology (2012)