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    Article

    Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

    Addressing Indigenous rights and interests in genetic resources has become increasingly challenging in an open science environment that promotes unrestricted access to genomic data. Although Indigenous experie...

    Maui Hudson, Nanibaa’ A. Garrison, Rogena Sterling… in Nature Reviews Genetics (2020)

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    Advancing diagnosis and research for rare genetic diseases in Indigenous peoples

    Achieving a diagnosis for Indigenous people living with a rare, often genetic, disease is crucial for equitable healthcare. The International Rare Disease Research Consortium convened a global Task Force to br...

    Gareth Baynam, Daria Julkowska, Sarah Bowdin, Azure Hermes… in Nature Genetics (2024)