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A Person-Centered Approach to Breaking Bad News
Receiving a neurological diagnosis is typically an extraordinarily difficult time for patients and their families and has been described as a type of existential shock. Communicating the news of a serious diag...
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Article
Open AccessCaregivers’ experiences of a home support program after the hospital discharge of an older family member: a qualitative analysis
The ageing global population has seen increasing numbers of older people living with chronic health problems, declining function, and frailty. As older people seek to live out their years at home, family membe...
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Open AccessInternational validation of the EORTC QLQ-PRT20 module for assessment of quality of life symptoms relating to radiation proctitis: a phase IV study
Although patients experience radiation proctitis post radiotherapy no internationally tested instruments exist to measure these symptoms. This Phase IV study tested the scale structure, reliability and validit...
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Article
Open AccessKey features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review
Indigenous peoples in developed countries have reduced life expectancies, particularly from chronic diseases. The lack of access to and take up of palliative care services of Indigenous peoples is an ongoing c...
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Open AccessExploring barriers to assessment of bereavement risk in palliative care: perspectives of key stakeholders
Palliative care standards advocate support for grieving caregivers, given that some bereaved people fail to integrate their loss, experience ongoing emotional suffering and adverse health outcomes. Research sh...
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Open AccessProtocol for a randomised controlled trial of an outreach support program for family carers of older people discharged from hospital
Presentations to hospital of older people receiving family care at home incur substantial costs for patients, families, and the health care system, yet there can be positive carer outcomes when systematically ...
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Article
Open AccessThe effect of caregiving on bereavement outcome: study protocol for a longitudinal, prospective study
The aim of the current study is to determine the effects of caregiving on bereavement outcome. The study will address two important gaps in the research literature: (1) the relationship between pre-death distr...
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Open AccessIdentifying barriers and improving communication between cancer service providers and Aboriginal patients and their families: the perspective of service providers
Aboriginal Australians experience poorer outcomes from cancer compared to the non-Aboriginal population. Some progress has been made in understanding Aboriginal Australians’ perspectives about cancer and their...
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Open AccessImproving palliative care outcomes for Aboriginal Australians: service providers’ perspectives
Aboriginal Australians have a lower rate of utilisation of palliative care services than the general population. This study aimed to explore care providers’ experiences and concerns in providing palliative car...
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Open AccessIs dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?
Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in t...
