21 Result(s)

Article

Development of consensus-driven SPIRIT and CONSORT extensions for early phase dose-finding trials: the DEFINE study

Early phase dose-finding (EPDF) trials are crucial for the development of a new intervention and influence whether it should be investigated in further trials. Guidance exists for clinical trial protocols and ...

Olga Solovyeva, Munyaradzi Dimairo, Christopher J. Weir, Siew Wan Hee… in BMC Medicine (2023)

Article

Commentary: Advocating for patient and public involvement and engagement in health economic evaluation

Patient and public involvement in health economic evaluation is still relatively rare, compared to other areas of health and social care research. Develo** stronger patient and public involvement in health e...

Sophie Staniszewska, Ivett Jakab, Eric Low… in Research Involvement and Engagement (2023)

Article

Adopting recommendations for implementing patient involvement in cancer research: a funder’s approach

The role of patients in cancer research is undergoing a significant evolution as all stakeholders seek to enhance the level of direct patient involvement in the design and development of clinical trials. Howev...

Alexandre B. Costa Alencar, Wendy K. D. Selig… in Research Involvement and Engagement (2023)

Article

Standardised data on initiatives—STARDIT: Beta version

There is currently no standardised way to share information across disciplines about initiatives, including fields such as health, environment, basic science, manufacturing, media and international development...

Jack S. Nunn, Thomas Shafee, Steven Chang… in Research Involvement and Engagement (2022)

Article

Hidden in plain sight? Identifying patient-authored publications

Patient advocates are increasingly authoring peer-reviewed publications that could enhance patient care and understanding of the lived experience. Although patient authorship may be seen as an innovation in th...

Jacqui Oliver, Dawn Lobban, Laura Dormer… in Research Involvement and Engagement (2022)

Article

“Could you give us an idea on what we are all doing here?” the Patient Voice in Cancer Research (PVCR) starting the journey of involvement in Ireland

Involving patients and their carers in research has become more common, as funders demand evidence of involvement. The ‘Patient Voice in Cancer Research’ (PVCR) is an initiative led by University College Dubli...

Éidín Ní Shé, Aoife Gordan, Barbara Hughes, Tom Hope… in Research Involvement and Engagement (2021)

Article

Formalising the induction of patient and public involvement contributors on trial oversight committees

Clinical Trials Units are encouraged to integrate Patient and Public Involvement (PPI) into all aspects of trial design, running and oversight. This research explored the induction and training of PPI Contribu...

Emily C. Pickering, Bec Hanley, Philip Bell… in Research Involvement and Engagement (2021)

Article

The value of the patient and public contribution to cancer research UK’s review of covid-19 impact on its clinical research portfolio

In July 2020 Cancer Research UK undertook a rapid review of the studies in its clinical research portfolio to assess the impact of the Covid-19 pandemic. The review examined over 160 research studies funded by...

Anne Croudass, Richard Stephens in Research Involvement and Engagement (2021)

Article

Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations

There are increasing calls for patient involvement in sharing health research results, but no evidence-based recommendations to guide such involvement. Our objectives were to: (1) conduct a systematic review o...

Lauri Arnstein, Anne Clare Wadsworth… in Research Involvement and Engagement (2020)

Article

Develo** the infrastructure for patient review in academic journals

Peer review is a well-established part of academic publishing. Its function is to assess the quality of a manuscript before publication in a journal. Research Involvement and Engagement is the world’s first co-pr...

Sophie Staniszewska, Richard Stephens, Ella Flemyng in Research Involvement and Engagement (2018)

Article

When participants get involved: reconsidering patient and public involvement in clinical trials at the MRC Clinical Trials Unit at UCL

Patient and public involvement (PPI) in clinical trials aims to ensure that research is carried out collaboratively with patients and/or members of the public. However, current guidance on involving clinical t...

Claire L. Vale, William J. Cragg, Ben Cromarty, Bec Hanley, Annabelle South… in Trials (2018)

Article

Abstracts from the NIHR INVOLVE Conference 2017

Delia Muir, Lidewij Eva Vat, Malori Keller, Tim Bell… in Research Involvement and Engagement (2017)

Article

Research Involvement and Engagement: reflections so far and future directions

Two years ago we launched Research Involvement and Engagement (RIE) as an interdisciplinary co-produced journal, focusing on patient and wider involvement and engagement in all stages of health and social care re...

Richard Stephens, Sophie Staniszewska in Research Involvement and Engagement (2017)

Article

Correction: Corrigendum: Can we deliver randomized trials of focal therapy in prostate cancer?

Nature Reviews Clinical Oncology 11, 482–491 (2014) In the published version of this article, the affiliation and position held by Dr Viktor Berge was incorrectly stated as Professor of Urology and Director of...

Hashim U. Ahmed, Viktor Berge, David Bottomley… in Nature Reviews Clinical Oncology (2017)

Article

Erratum to: ‘Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trials Unit at University College London: findings from ten case studies’

Annabelle South, Bec Hanley, Mitzy Gafos, Ben Cromarty, Richard Stephens… in Trials (2016)

Article

Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trials Unit at University College London: findings from ten case studies

Patient and public involvement (PPI) in studies carried out by the UK Medical Research Council Clinical Trials Unit (MRC CTU) at University College London varies by research type and setting. We developed a se...

Annabelle South, Bec Hanley, Mitzy Gafos, Ben Cromarty, Richard Stephens… in Trials (2016)

Article

Thanks to all those who reviewed for Research Involvement and Engagement in 2015

A peer-reviewed journal would not survive without the generous time and insightful comments of the reviewers, whose efforts often go unrecognized. Although final decisions are always editorial, they are greatl...

Richard Stephens, Sophie Staniszewska in Research Involvement and Engagement (2016)

Article

One small step…

This editorial introduces the new, online, open-access journal Research Involvement and Engagement. The journal considers manuscripts on any aspect of the engagement or involvement of patients, carers or members ...

Richard Stephens, Sophie Staniszewska in Research Involvement and Engagement (2015)

Article

The randomised clinical trial and the hazard ratio – medical research’s Emperor’s New Clothes?

As the enthusiasm for individualized treatment and targeted therapies continues to gain momentum, it seems timely to re-assess whether our current research tools are fit for purpose. Randomized Clinical Trials...

Richard Stephens, David Stewart in BMC Cancer (2014)

Article

A mixed exercise training programme is feasible and safe and may improve quality of life and muscle strength in multiple myeloma survivors

Exercise programmes are beneficial for cancer patients however evidence is limited in patients with multiple myeloma (MM), a cancer that is characterised by osteolytic bone disease, giving rise to high levels ...

Lara Groeneveldt, Gill Mein, Rachel Garrod, Andrew P Jewell, Ken Van Someren… in BMC Cancer (2013)