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Adequate information about clinical trial results must be given to participants
The lay summary of trial results to be provided to participants should be written in plain language, use infographics and be concise — something that currently is almost never achieved.
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Open AccessDevelopment of consensus-driven SPIRIT and CONSORT extensions for early phase dose-finding trials: the DEFINE study
Early phase dose-finding (EPDF) trials are crucial for the development of a new intervention and influence whether it should be investigated in further trials. Guidance exists for clinical trial protocols and ...
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Open AccessCommentary: Advocating for patient and public involvement and engagement in health economic evaluation
Patient and public involvement in health economic evaluation is still relatively rare, compared to other areas of health and social care research. Develo** stronger patient and public involvement in health e...
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Open AccessAdopting recommendations for implementing patient involvement in cancer research: a funder’s approach
The role of patients in cancer research is undergoing a significant evolution as all stakeholders seek to enhance the level of direct patient involvement in the design and development of clinical trials. Howev...
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New insights into the unusual nesting biology of the bee Trichocolletes orientalis (Hymenoptera: Colletidae, Neopasiphaeinae), particularly its larval ‘oil bath’
Trichocolletes orientalis is an Australian solitary, ground-nesting bee, reported to have some unusual aspects to its nesting biology. Prime among these, and a focus for the present study, is the production of co...
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Open AccessKey considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection
Patient-reported outcomes (PROs) are used in clinical trials to provide evidence of the benefits and risks of interventions from a patient perspective and to inform regulatory decisions and health policy. The ...
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Open AccessStandardised data on initiatives—STARDIT: Beta version
There is currently no standardised way to share information across disciplines about initiatives, including fields such as health, environment, basic science, manufacturing, media and international development...
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Open AccessHidden in plain sight? Identifying patient-authored publications
Patient advocates are increasingly authoring peer-reviewed publications that could enhance patient care and understanding of the lived experience. Although patient authorship may be seen as an innovation in th...
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Open AccessFrankly, we do give a damn: improving patient outcomes with swearing
Words can change the way a patient thinks, feels, and performs. Swearing, or uttering a word that is considered taboo, is an often-ignored part of our language, even though over 50% of the population swears “s...
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Open Access“Could you give us an idea on what we are all doing here?” the Patient Voice in Cancer Research (PVCR) starting the journey of involvement in Ireland
Involving patients and their carers in research has become more common, as funders demand evidence of involvement. The ‘Patient Voice in Cancer Research’ (PVCR) is an initiative led by University College Dubli...
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Open AccessFormalising the induction of patient and public involvement contributors on trial oversight committees
Clinical Trials Units are encouraged to integrate Patient and Public Involvement (PPI) into all aspects of trial design, running and oversight. This research explored the induction and training of PPI Contribu...
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Open AccessThe value of the patient and public contribution to cancer research UK’s review of covid-19 impact on its clinical research portfolio
In July 2020 Cancer Research UK undertook a rapid review of the studies in its clinical research portfolio to assess the impact of the Covid-19 pandemic. The review examined over 160 research studies funded by...
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Open AccessPatient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations
There are increasing calls for patient involvement in sharing health research results, but no evidence-based recommendations to guide such involvement. Our objectives were to: (1) conduct a systematic review o...
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Open AccessDevelo** the infrastructure for patient review in academic journals
Peer review is a well-established part of academic publishing. Its function is to assess the quality of a manuscript before publication in a journal. Research Involvement and Engagement is the world’s first co-pr...
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Open AccessWhen participants get involved: reconsidering patient and public involvement in clinical trials at the MRC Clinical Trials Unit at UCL
Patient and public involvement (PPI) in clinical trials aims to ensure that research is carried out collaboratively with patients and/or members of the public. However, current guidance on involving clinical t...
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Open AccessAbstracts from the NIHR INVOLVE Conference 2017
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Open AccessResearch Involvement and Engagement: reflections so far and future directions
Two years ago we launched Research Involvement and Engagement (RIE) as an interdisciplinary co-produced journal, focusing on patient and wider involvement and engagement in all stages of health and social care re...
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Correction: Corrigendum: Can we deliver randomized trials of focal therapy in prostate cancer?
Nature Reviews Clinical Oncology 11, 482–491 (2014) In the published version of this article, the affiliation and position held by Dr Viktor Berge was incorrectly stated as Professor of Urology and Director of...
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Open AccessDoes Emotional Arousal Influence Swearing Fluency?
This study assessed the effect of experimentally manipulated emotional arousal on swearing fluency. We hypothesised that swear word generation would be increased with raised emotional arousal. The emotional ar...
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Open AccessDoes familial risk for alcohol use disorder predict alcohol hangover?
Positive family history of alcohol use disorder (FHP), a variable associated with propensity for alcohol use disorder (AUD), has been linked with elevated hangover frequency and severity, after controlling for...
