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Article
Open AccessPatient-driven research priorities for patient-centered measurement
Patient-centred measurement (PCM) emphasizes a holistic approach wherein the voices of patients are reflected in the standardized use of patient-reported outcome and experience measures and are represented thr...
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Article
Open AccessUnsupervised item response theory models for assessing sample heterogeneity in patient-reported outcomes measures
Unsupervised item-response theory (IRT) models such as polytomous IRT based on recursive partitioning (IRTrees) and mixture IRT (MixIRT) models can be used to assess differential item functioning (DIF) in pati...
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Article
Open AccessResponse shift results of quantitative research using patient-reported outcome measures: a descriptive systematic review
The objective of this systematic review was to describe the prevalence and magnitude of response shift effects, for different response shift methods, populations, study designs, and patient-reported outcome me...
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Article
Open AccessQuality of life of the Canadian population using the VR-12: population norms for health utility values, summary component scores and domain scores
To estimate Canadian population norms (health utility values, summary component scores and domain scores) for the VR-12.
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Article
Open AccessMap** a research-advocacy-policy agenda on human rights and albinism: a mixed methods project
Persons with albinism face challenges to their wellbeing, safety, and security, ranging from vision impairment and skin cancer to stigma and discrimination. In some regions, they also face human rights atrocit...
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Article
Patient-reported mental health and well-being trajectories in oncology patients during radiation therapy: an exploratory retrospective cohort analysis using the Ontario Cancer Registry
Mental health and well-being trajectories are not expected to be homogeneous in diverse clinical populations. This exploratory study aims to identify subgroups of patients with cancer receiving radiation thera...
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Article
Measuring skill-based health literacy in chronic airway disease patients: the development and psychometric evaluation of the Vancouver airways health literacy tool (VAHLT)
This article describes the development of the Vancouver airways health literacy tool (VAHLT), a novel measure of skill-based health literacy specific to chronic airway diseases (CADs). Across several phases, p...
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Article
Open AccessImplications of the syntheses on definition, theory, and methods conducted by the Response Shift – in Sync Working Group
Our aim is to advance response shift research by explicating the implications of published syntheses by the Response Shift – in Sync Working Group in an integrative way and suggesting ways for improving the qu...
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Article
Open AccessThe use of text-mining software to facilitate screening of literature on centredness in health care
Research evidence supporting the implementation of centredness in health care is not easily accessible due to the sheer amount of literature available and the diversity in terminology and conceptualisations us...
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Reference Work Entry In depth
Nursing and Quality of Life
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Reference Work Entry In depth
MEDLINE
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Article
Accuracy of mixture item response theory models for identifying sample heterogeneity in patient-reported outcomes: a simulation study
Mixture item response theory (MixIRT) models can be used to uncover heterogeneity in responses to items that comprise patient-reported outcome measures (PROMs). This is accomplished by identifying relatively h...
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Article
Open AccessKnowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers
To support the use of quality of life (QOL) assessment tools for older adults, we developed knowledge translation (KT) resources tailored for four audiences: (1) older adults and their family caregivers (micro...
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Living Reference Work Entry In depth
Nursing and Quality of Life
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Article
An Evidence-Based Theory About PRO Use in Kidney Care: A Realist Synthesis
There is international interest on the use of patient-reported outcomes (PROs) in nephrology.
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Article
Progress in response-shift research needs diverse approaches
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Article
Open AccessCritical examination of current response shift methods and proposal for advancing new methods
This work is part of an international, interdisciplinary initiative to synthesize research on response shift in results of patient-reported outcome measures. The objective is to critically examine current resp...
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Article
Open AccessImplications of response shift for micro-, meso-, and macro-level healthcare decision-making using results of patient-reported outcome measures
Results of patient-reported outcome measures (PROMs) are increasingly used to inform healthcare decision-making. Research has shown that response shift can impact PROM results. As part of an international coll...
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Article
Open AccessResponse shift in results of patient-reported outcome measures: a commentary to The Response Shift—in Sync Working Group initiative
The Working Group undertook a critical, comprehensive synthesis of the response shift work to date. We aimed to (1) describe the rationale for this initiative; (2) outline how the Working Group operated; (3) s...
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Article
Patient-reported outcomes and the identification of subgroups of atrial fibrillation patients: a retrospective cohort study of linked clinical registry and administrative data
Previous research about the health and quality of life of people with atrial fibrillation has typically identified a single health trajectory. Our study aimed to examine variability in health trajectories and ...
