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Open AccessExperiences of cohabiting partners of women diagnosed with cancer during pregnancy: a qualitative study
When a pregnant woman is diagnosed with cancer, she faces complex and unique challenges while navigating both obstetric and oncological care. Despite often being the primary support for women diagnosed with ca...
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Article
Open AccessExploring the experiences and priorities of women with a diagnosis of ovarian cancer
Ovarian cancer is the third most common gynaecological cancer among women, yet remains under-researched. Past studies suggest that women who present with ovarian cancer have more supportive care needs compared...
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Article
Open AccessInformation and decision support needs: A survey of women interested in receiving planned oocyte cryopreservation information
Identifying the information and decision support needs of women interested in receiving planned oocyte cryopreservation (POC) information.
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Article
Open AccessThe development and phase 1 evaluation of a Decision Aid for elective egg freezing
Elective egg freezing decisions are complex. We developed a Decision Aid for elective egg freezing and conducted a phase 1 study to evaluate its acceptability and utility for decision-making.
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Article
Post-procedure counseling is recommended for disposal, export, and donation of unused frozen eggs (vitrified oocyte) for research or teaching/training
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Article
Isolation experienced by women with gestational cancer: could peer support and tailored information be the answer?
Women diagnosed with cancer during pregnancy (gestational cancer) are a small but vulnerable population, with experts suggesting they require greater psycho-social support than either other women with cancer o...
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Article
Who is managing menopausal symptoms, sexual problems, mood and sleep disturbance after breast cancer and is it working? Findings from a large community-based survey of breast cancer survivors
To determine the nature and severity of vasomotor symptoms, sexual problems, mood and sleep disturbance in community-dwelling breast cancer patients, whether and where they received treatment for these symptom...
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Article
Open AccessImpact of national guidelines on use of BRCA1/2 germline testing, risk management advice given to women with pathogenic BRCA1/2 variants and uptake of advice
This nationwide study assessed the impact of nationally agreed cancer genetics guidelines on use of BRCA1/2 germline testing, risk management advice given by health professionals to women with pathogenic BRCA1/2 ...
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Article
Imputation techniques on missing values in breast cancer treatment and fertility data
Clinical decision support using data mining techniques offers more intelligent way to reduce the decision error in the last few years. However, clinical datasets often suffer from high missingness, which adver...
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Satisfaction, disappointment and regret surrounding fertility preservation decisions in the paediatric and adolescent cancer population
With over 80% of paediatric and adolescent cancer patients surviving into adulthood, quality-of-life issues such as future fertility are increasingly important. However, little is known about regret around dec...
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Article
Open AccessA cluster randomized controlled trial of an online psychoeducational intervention for people with a family history of depression
People with a family history of major depressive disorder (MDD) or bipolar disorder (BD) report specific psychoeducational needs that are unmet by existing online interventions. This trial aimed to test whethe...
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Open AccessImproving women’s knowledge about prenatal screening in the era of non-invasive prenatal testing for Down syndrome – development and acceptability of a low literacy decision aid
Access to information about prenatal screening is important particularly in light of new techniques such as non-invasive prenatal testing (NIPT). This study aimed to develop and examine the acceptability of a ...
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Open AccessAssessing the usefulness and acceptability of a low health literacy online decision aid about reproductive choices for younger women with breast cancer: the aLLIAnCE pilot study protocol
Young women diagnosed with breast cancer may be confronted by many difficult decisions, especially around fertility preservation prior to commencing cancer treatment. The information to be conveyed is complex,...
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A Psycho-Educational Intervention for People with a Family History of Depression: Pilot Results
We developed and pilot-tested the first online psycho-educational intervention that specifically targets people with a family history of depression (‘LINKS’). LINKS provides genetic risk information and evidence-...
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Exploring clinicians’ attitudes about using aspirin for risk reduction in people with Lynch Syndrome with no personal diagnosis of colorectal cancer
Recent research has shown that aspirin reduces the risk of cancers associated with Lynch Syndrome. However, uncertainty exists around the optimal dosage, treatment duration and whether the benefits of aspirin ...
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Article
Open AccessCluster randomized controlled trial of a psycho-educational intervention for people with a family history of depression for use in general practice
The strongest risk factor for depression is having a family history of the condition. Many individuals with a family history of depression are concerned about their personal risk for depression and report unme...
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Article
Open AccessHow should we discuss genetic testing with women newly diagnosed with breast cancer? Design and implementation of a randomized controlled trial of two models of delivering education about treatment-focused genetic testing to younger women newly diagnosed with breast cancer
Germline BRCA1 and BRCA2 mutation testing offered shortly after a breast cancer diagnosis to inform women’s treatment choices - treatment-focused genetic testing ‘TFGT’ - has entered clinical practice in speciali...
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The fertility-related concerns, needs and preferences of younger women with breast cancer: a systematic review
Breast cancer is the most commonly diagnosed type of cancer in reproductive aged women. Adjuvant systemic therapy is recommended in most women and has been demonstrated to reduce the risk of recurrence and inc...
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Article
A randomized controlled trial of a decision aid for women considering genetic testing for breast and ovarian cancer risk
To measure the effectiveness of a tailored decision aid (DA) designed to help women make informed decisions about genetic testing for breast/ovarian cancer risk.
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Article
Development and Pilot Testing of Two Decision Aids for Individuals Considering Genetic Testing for Cancer Risk
Current practice in genetic counseling may not allow a full deliberation of the consequences of decisions about genetic testing for cancer risk, despite increasing demand for these services. Thus, two decision...
