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  1. No Access

    Article

    Global State of the Art and Science of Childhood Dysphagia: Similarities and Disparities in Burden

    Feeding/swallowing and airway protection are complex functions, essential for survival, and continue to evolve throughout the lifetime. Medical and surgical advances across the globe have improved the long-ter...

    Maureen A. Lefton-Greif, Joan C. Arvedson, Daniele Farneti, Deborah S. Levy in Dysphagia (2024)

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    Article

    Translation, Cultural Adaptation, Reliability, and Validity Evidence of the Feeding/Swallowing Impact Survey (FS–IS) to Brazilian Portuguese

    The purpose of this study was to translate and adapt the Feeding/Swallowing Impact Survey (FS–IS) into Brazilian Portuguese and provide a validated instrument for caregivers of children with feeding/swallowing...

    Cristiane G. Rama, Fernanda B. Bernardes, Maureen A. Lefton-Greif in Dysphagia (2022)

  3. Article

    Open Access

    Correction to: Growth in ataxia telangiectasia

    An amendment to this paper has been published and can be accessed via the original article.

    Valerie A. I. Natale, Tim J. Cole in Orphanet Journal of Rare Diseases (2021)

  4. Article

    Open Access

    Growth in ataxia telangiectasia

    Ataxia telangiectasia (A-T) is a DNA repair disorder that affects multiple body systems. Neurological problems and immunodeficiency are two important features of this disease. At this time, two main severity g...

    Valerie A. I. Natale, Tim J. Cole in Orphanet Journal of Rare Diseases (2021)

  5. No Access

    Article

    BaByVFSSImP© A Novel Measurement Tool for Videofluoroscopic Assessment of Swallowing Impairment in Bottle-Fed Babies: Establishing a Standard

    This investigation tested the construct validity of the first standardized assessment tool, the BaByVFSS Impairment Profile, (BaByVFSSImP©), developed for the quantification of swallowing observations made fro...

    Bonnie Martin-Harris, Kathryn A. Carson, Jeanne M. Pinto in Dysphagia (2020)

  6. No Access

    Article

    First Steps Towards Development of an Instrument for the Reproducible Quantification of Oropharyngeal Swallow Physiology in Bottle-Fed Children

    The incidence of feeding/swallowing impairments (deglutition disorders) in young children is rising and poses serious acute and long-term health consequences. Accurate detection and prompt intervention can les...

    Maureen A. Lefton-Greif, Katlyn Elizabeth McGrattan, Kathryn A. Carson in Dysphagia (2018)

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    Article

    FIRST, “KNOW” HARM: Response to Letter to the Editor

    Matthew J. Bizzarro, Maureen A. Lefton-Greif, Brian M. McGinley in Dysphagia (2016)

  8. Article

    Open Access

    Ataxia telangiectasia: a review

    Ataxia telangiectasia (A-T) is an autosomal recessive disorder primarily characterized by cerebellar degeneration, telangiectasia, immunodeficiency, cancer susceptibility and radiation sensitivity. A-T is ofte...

    Cynthia Rothblum-Oviatt, Jennifer Wright in Orphanet Journal of Rare Diseases (2016)

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    Article

    Concordance Between Aspiration Detected on Upper Gastrointestinal Series and Videofluoroscopic Swallow Study in Bottle-Fed Children

    The increasing incidence of pediatric dysphagia has raised questions about how to identify children at risk for aspiration. Multiple investigative imaging modalities are considered in diagnostic algorithms, si...

    Renee Flax-Goldenberg, Kopal S. Kulkarni, Kathryn A. Carson, Jeanne M. Pinto in Dysphagia (2016)

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    Article

    Oral Alimentation in Neonatal and Adult Populations Requiring High-Flow Oxygen via Nasal Cannula

    Use of high-flow oxygen via nasal cannula (HFO2-NC) is increasingly common in intensive care unit (ICU) settings. Despite the critical interface between respiration and swallowing, and the high acuity of patients...

    Steven B. Leder, Jonathan M. Siner, Matthew J. Bizzarro, Brian M. McGinley in Dysphagia (2016)

  11. No Access

    Article

    Impact of Children’s Feeding/Swallowing Problems: Validation of a New Caregiver Instrument

    The impact of caring for children with deglutition disorders is poorly understood and tools to measure the unique concerns of these caregivers are lacking. The aims of this investigation were to develop and va...

    Maureen A. Lefton-Greif, Sande O. Okelo, Jennifer M. Wright, Joseph M. Collaco in Dysphagia (2014)

  12. Article

    Open Access

    Safety and caregiver satisfaction with gastrostomy in patients with Ataxia Telangiectasia

    Ataxia Telangiectasia (A-T) is a rare monogenetic neurodegenerative disease with pulmonary, nutritional, and dysphagic complications. Gastrostomy tube (GT) feedings are commonly recommended to manage these co-...

    Maureen A Lefton-Greif, Thomas O Crawford in Orphanet Journal of Rare Diseases (2011)