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Article
Open AccessReport on palliative sedation medication usage: a survey of palliative care experts in Eight European countries
The practice of palliative sedation continues to raise ethical questions among people, which in turn leads to its varied acceptance and practice across regions. As part of the Palliative Sedation European Unio...
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Article
Open AccessPatient values in patient-provider communication about participation in early phase clinical cancer trials: a qualitative analysis before and after implementation of an online value clarification tool intervention
Patients with advanced cancer who no longer have standard treatment options available may decide to participate in early phase clinical trials (i.e. experimental treatments with uncertain outcomes). Shared dec...
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Article
Open AccessThe clinical practice of palliative sedation in patients dying from COVID-19: a retrospective chart review
Clinical experts experienced challenges in the practice of palliative sedation (PS) during the COVID-19 pandemic. Rapid deterioration in patients’ situation was observed while the indications for starting PS s...
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Article
Open AccessMonitoring the clinical practice of palliative sedation (PALSED) in patients with advanced cancer: an international, multicentre, non-experimental prospective observational study protocol
Palliative sedation involves the intentional lowering of consciousness at the end of life. It can be initiated to relieve a patient’s burden caused by refractory symptoms at the end of life. The impact of pall...
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Article
Open AccessCore values of patients with advanced cancer considering participation in an early-phase clinical trial: a qualitative study
This article identifies the core values that play a role in patients’ decision-making process about participation in early-phase clinical cancer trials.
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Article
Open AccessLiving and dying with incurable cancer: a qualitative study on older patients’ life values and healthcare professionals’ responsivity
In ageing Western societies, many older persons live with and die from cancer. Despite that present-day healthcare aims to be patient-centered, scientific literature has little knowledge to offer about how can...
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Article
Open AccessDisseminating research findings using a massive online open course for maximising impact and develo** recommendations for practice
Develo** recommendations for how we deliver healthcare is often left to leading experts in a field. Findings from the Integrated Palliative Care in cancer and chronic conditions (InSup-C) study, which aimed ...
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Article
Open AccessPalliative care for patients with substance use disorder and multiple problems: a qualitative study on experiences of healthcare professionals, volunteers and experts-by-experience
There is little information about how healthcare professionals feel about providing palliative care for patients with a substance use disorder (SUD). Therefore, this study aims to explore: 1) the problems and ...
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Article
Open AccessRealizing better doctor-patient dialogue about choices in palliative care and early phase clinical trial participation: towards an online value clarification tool (OnVaCT)
Patients with advanced cancer for whom standard systemic treatment is no longer available may be offered participation in early phase clinical trials. In the decision making process, both medical-technical inf...
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Article
Open AccessPalliative care for people with substance use disorder and multiple problems: a qualitative study on experiences of patients and proxies
Systematic research into palliative care (PC) for people with substance use disorder (SUD) and multiple problems is scarce. The existing literature shows problems in the organizational structure of this care, ...
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Article
Open AccessRecommendations on priorities for integrated palliative care: transparent expert consultation with international leaders for the InSuP-C project
The World Health Organisation (WHO) endorses integrated palliative care which has a significant impact on quality of life and satisfaction with care. Effective integration between hospices, palliative care ser...
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Reference Work Entry In depth
Integrated Palliative Care: Clinical, Organizational, and Health System Perspectives
This chapter explores current literature and initiatives in the field of integrated palliative care. The chapter starts with an exploration of the concept of integrated palliative care, followed by practice ex...
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Reference Work Entry In depth
Attending to the Suffering Other: A Case Study of Teleconsultation in Palliative Care at Home
Although this chapter has its origins in the Dutch practice of palliative care at home, its message is relevant to all countries in which a considerable percentage of the population prefers to die at home. The...
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Reference Work Entry In depth
Palliative Sedation: A Medical-Ethical Exploration
Palliative sedation involves the intentional lowering of consciousness in the last phase of life to relieve refractory symptoms. Most ethical controversies concern the application of continuous deep palliative...
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Article
Existentieel lijden als indicatie voor palliatieve sedatie
Behalve bij refractaire symptomen als pijn, dyspneu en delier passen artsen palliatieve sedatie ook toe bij niet-lichamelijke refractaire symptomen als existentieel lijden. Maar is dat wel de geë...
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Article
Open Access“Never at ease” – family carers within integrated palliative care: a multinational, mixed method study
Family carers manage a wide range of responsibilities in the lives and care of patients receiving palliative care. They fulfil multiple roles and perform activities within different settings. This has immediat...
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Living Reference Work Entry In depth
Attending to the Suffering Other: A Case Study of Teleconsultation in Palliative Care at Home
Although this chapter has its origins in the Dutch practice of palliative care at home, its message is relevant to all countries in which a considerable percentage of the population prefers to die at home. The...
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Living Reference Work Entry In depth
Palliative Sedation: A Medical-Ethical Exploration
Palliative sedation involves the intentional lowering of consciousness in the last phase of life to relieve refractory symptoms. Most ethical controversies concern the application of continuous deep palliative...
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Article
Open AccessIs the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe
There is a notable inequity in access to palliative care (PC) services between cancer and Chronic Heart Failure (CHF)/Chronic Obstructive Pulmonary Disease (COPD) patients which also translates into discrepanc...
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Article
Open AccessEnhancing integrated palliative care: what models are appropriate? A cross-case analysis
Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model sug...
