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Article
Open AccessReference exome data for Australian Aboriginal populations to support health-based research
Whole exome sequencing (WES) is a popular and successful technology which is widely used in both research and clinical settings. However, there is a paucity of reference data for Aboriginal Australians to unde...
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Article
Open AccessMobile phones support adherence and retention of indigenous participants in a randomised controlled trial: strategies and lessons learnt
Ensuring adherence to treatment and retention is important in clinical trials, particularly in remote areas and minority groups. We describe a novel approach to improve adherence, retention and clinical review...
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Article
Open AccessHealth professionals’ perceptions about the adoption of existing guidelines for the diagnosis of fetal alcohol spectrum disorders in Australia
Despite the availability of five guidelines for the diagnosis of fetal alcohol spectrum disorders (FASD), there is no national endorsement for their use in diagnosis in Australia. In this study we aimed to des...
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Article
Open AccessResearchers' experience with project management in health and medical research: Results from a post-project review
Project management is widely used to deliver projects on time, within budget and of defined quality. However, there is little published information describing its use in managing health and medical research pr...
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Article
Open AccessCollaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation
To collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008 http://www.ichr.uwa.edu.au/alcoholandpregnancy