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Article
Open AccessRace-related differences in the economic, healthcare-access, and psychological impact of COVID-19: personal resources associated with resilience
The impact of the coronavirus disease 2019 (COVID) is worse among those with fewer financial resources, in jobs not amenable to remote work, and in denser living conditions. People of color are more likely to ...
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Article
Open AccessPatient life aspirations in the context of Duchenne Muscular Dystrophy: a mixed-methods case–control study
Aspirations refer to wishes, ways of defining quality of life (QOL), and life goals. Living with chronic illness likely impacts a person’s life aspirations. Duchenne Muscular Dystrophy (DMD) is an inherited di...
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Article
Open AccessSiblings’ life aspirations in the context of Duchenne muscular dystrophy: a mixed-methods case-control study
The inevitable and progressive loss of independence in Duchenne Muscular Dystrophy (DMD) patients may have an impact on their siblings’ life aspirations. The present cross-sectional case-control study investig...
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Article
If it’s information, it’s not “bias”: a sco** review and proposed nomenclature for future response-shift research
The growth in response-shift methods has enabled a stronger empirical foundation to investigate response-shift phenomena in quality-of-life (QOL) research; but many of these methods utilize certain language in...
