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Article
Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities
To establish the content validity of LIMB-Q Kids, a new patient-reported outcome measure (PROM) for children with lower limb deformities. This study focused on three key components of content validity, i.e., ...
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Article
Open AccessAdvanced translation and cultural adaption of the LYMPH-Q Upper Extremity Module from English to Danish
To better quantify the impact that breast cancer-related arm lymphedema (BCRL) has on health-related quality of life (HR-QOL), a disease-specific patient-reported outcome measure (PROM) is needed. The LYMPH-Q ...
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Chapter
Patient-Important Outcome Measures in Surgical Care
Patient-reported are becoming increasingly important in as there has been an emphasis on patient-centered care and of reported by patients themselves. To critically analyze studies describing and ult...
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Article
Open AccessDanish translation and linguistic validation of the BODY-Q: a description of the process
Patient-reported outcome (PRO) instruments are increasingly being included in research and clinical practice to assess the patient point of view. Bariatric and body contouring surgery has the potential to impr...
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Chapter
Health-Related Quality of Life
The adolescent and young adult (AYA) period is unique; individuals are faced with personal and developmental challenges, which are amplified by having a diagnosis of cancer. Understanding the unique challenges...
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Article
Identifying the supportive care needs of adolescent and young adult survivors of cancer: a qualitative analysis and systematic literature review
In Canada, adolescent survivors of cancer are treated mainly at pediatric centers, while young adults are treated at adult centers. Both care environments are reported as being inappropriate and do not fulfill...
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Article
Quality of life among breast cancer patients with lymphedema: a systematic review of patient-reported outcome instruments and outcomes
Lymphedema following breast cancer surgery remains a common and feared treatment complication. Accurate information on health-related quality of life (HRQOL) outcomes among patients with lymphedema is critical...
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Article
Erratum to: Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions
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Article
Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions
The impact of cancer on children can be assessed through various concepts including mental and physical health status and most significantly quality of life (QOL). It has been difficult to compare data collect...
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Article
Develo** a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being
This paper describes a literature review conducted to identify important factors that have been investigated as explanations of variability in the health and well-being of parents of children with cancer. Our ...
