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Article
Open AccessUnveiling the invisible: a qualitative interview study on the impact of young onset Parkinson’s disease on (ex-partners)
Living with young onset Parkinson’s disease (YOPD) not only affects the persons with YOPD, but also their families. Although caregiver burden has been researched in Parkinson’s disease in general, little is kn...
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Article
Open AccessAssessing the validity of a Parkinson’s care evaluation: the PRIME-NL study
The PRIME-NL study prospectively evaluates a new integrated and personalized care model for people with parkinsonism, including Parkinson’s disease, in a selected region (PRIME) in the Netherlands. We address ...
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Article
Open AccessCaregiver burden in Parkinson’s disease: a mixed-methods study
Providing informal care for a person with Parkinson’s disease (PD) can be a demanding process affecting several dimensions of a caregiver’s life and potentially causing caregiver burden. Despite the emerging l...
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Article
Open AccessDeterminants of co** styles of people with Parkinson’s Disease
Little is known about how people with Parkinson’s disease (PD) cope with stressful life events. We examined the determinants of specific co** strategies and whether specific choices have any impact on qualit...
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Article
Open AccessUsing former carers’ expertise in peer support for carers of people with Parkinson’s Disease
Informal carers gain unique experience and knowledge when caring for a loved person. However, this knowledge often remains unused after their loved one with Parkinson’s disease (PD) has passed away. Hence, two...