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Research ethics and artificial intelligence for global health: perspectives from the global forum on bioethics in research
BackgroundThe ethical governance of Artificial Intelligence (AI) in health care and public health continues to be an urgent issue for attention in...
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Rank Has Its Privileges: Explaining Why Laboratory Safety Is a Persistent Challenge
Environmental, health, and safety management systems have become common in research settings to improve laboratory safety through systematic...
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Electronic informed consent criteria for research ethics review: a sco** review
BackgroundThe research shows a growing trend in using an electronic platform to supplement or replace traditional paper-based informed consent...
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Beyond translations, perspectives for researchers to consider to enhance comprehension during consent processes for health research in sub-saharan Africa: a sco** review
BackgroundLiterature on issues relating to comprehension during the process of obtaining informed consent (IC) has largely focused on the challenges...
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The Perfect Moral Storm: Diverse Ethical Considerations in the COVID-19 Pandemic
The COVID-19 pandemic has both exposed and created deep rifts in society. It has thrust us into deep ethical thinking to help justify the difficult...
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The Unintended Consequences of Chile’s Neurorights Constitutional Reform: Moving beyond Negative Rights to Capabilities
As scholars envision a new regulatory or statutory neurorights schema it is important to imagine unintended consequences if reforms are implemented...
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Religious Perspectives on Precision Medicine in Singapore
Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical...
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Community Engagement, Ethics Review, and Regulation
Community engagement is ethically important for many types of research. Given that HCS represent a particularly complex, sometimes unfamiliar, and...
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The full spectrum of ethical issues in dementia research: findings of a systematic qualitative review
BackgroundWhen including participants with dementia in research, various ethical issues arise. At present, there are only a few existing...
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Ethics and Integrity for Research in Disasters and Crises
Disasters hit with increased frequency, sometimes leading to humanitarian crises. Some are acute, like earthquakes, while others are chronic, as with...
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The Ethics of Anthropology
The early history of professional anthropology is characterized by chronic ambivalence between, on one hand, participation in colonial rule...
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Development and validation of a tool to assess researchers’ knowledge of human subjects’ rights and their attitudes toward research ethics education in Saudi Arabia
BackgroundResearchers must adhere to ethical and scientific standards in their research involving human subjects; therefore, their knowledge of human...
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Bioethics in Secular, Pluralistic Society
The existence of a plurality of ethical perspectives based on the presence of diverse religions and worldviews in contemporary society can make it...
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Towards a Taxonomy for the Opacity of AI Systems
The research program of eXplainable AI (XAI) has been developed with the aim of providing tools and methods for reducing opacity and making AI...
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Chapter 19 Human Guinea Pigs: Uncovering Principles for Ethical Research through a Personal Narrative
The reprinting of Kenneth Mellanby’s Human Guinea Pigs is an important contribution to understanding our past and interrogating our present (see...
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Experimenting with modifications to consent forms in comparative effectiveness research: understanding the impact of language about financial implications and key information
BackgroundInformed consent forms are intended to facilitate research enrollment decisions. However, the technical language in institutional templates...
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What Happens After a Neural Implant Study? Neuroethics Expert Workshop on Post-Trial Obligations
What happens at the end of a clinical trial for an investigational neural implant? It may be surprising to learn how difficult it is to answer this...
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Ethics review of big data research: What should stay and what should be reformed?
BackgroundEthics review is the process of assessing the ethics of research involving humans. The Ethics Review Committee (ERC) is the key oversight...
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Defining and Defending Vulnerability
This chapter presents a definition of both universal and situational vulnerability. It argues that those beings with welfare and agency interests...