Search
Search Results
-
Methodological advances in patient-centered rare disease research: the UTHealth Houston Turner Syndrome Society of the United States research registry
BackgroundMany different clinical specialists provide care to patients with Turner syndrome (TS), who have highly variable clinical manifestations....
-
The UK clinical eye research strategy: refreshing research priorities for clinical eye research in the UK
ObjectivesTo validate and update the 2013 James Lind Alliance (JLA) Sight Loss and Vision Priority Setting Partnership (PSP)’s research priorities...
-
Using Research to Transform Electronic Health Record Modernization: Advancing a VA Partnered Research Agenda to Increase Research Impacts
BackgroundThe U.S. Department of Veterans Affairs (VA) is undergoing an enterprise-wide transition from a homegrown electronic health record (EHR)...
-
Co-producing an online patient public community research hub: a qualitative study exploring the perspectives of national institute for health research (NIHR) research champions in England
BackgroundPatient and Public Involvement and Engagement (PPIE) should be embedded as part of researchers’ everyday practice. However, this can be...
-
Key ingredients for successful collaboration in health research: perspectives of patient research partners
BackgroundThere are increasing publications on meaningful collaboration between researchers and patient research partners (PRPs), but fewer...
-
Rural research capacity: a co-created model for research success
PurposeThe United States’ National Institutes of Health (NIH) have long challenged academia to improve clinical trial enrollment, especially in...
-
Reporting Individual-Level Research Results from Neurocognitive and Psychological Research in People Living with HIV: Lessons from Dementia Research
Purpose of ReviewThere are growing expectations for the return of individual-level research results (RoR), which promotes autonomy and potential...
-
The Brain & Behavior Research Foundation’s philanthropic support for neuropsychiatric research
In the 36 years since its founding, the Brain and Behavior Research Foundation (BBRF) has become one of the world’s largest non-government funders of...
-
Catalysing global surgery: a meta-research study on factors affecting surgical research collaborations with Africa
IntroductionIn December 2019, the COVID-19 pandemic highlighted the urgent need for rapid collaboration, research, and interventions. International...
-
Time and change: a typology for presenting research findings in qualitative longitudinal research
BackgroundQualitative longitudinal research (QLR) is an emerging methodology used in health research. The method literature states that the change in...
-
Involving patients in healthcare research is well documented but can it work in lab-based research?
Public and Patient Involvement in research is becoming a requirement on most research funding applications; this includes both healthcare and...
-
Current SIDS research: time to resolve conflicting research hypotheses and collaborate
AbstractFrom the earliest publications on cot death or sudden infant death syndrome (SIDS) through to this day, clinical pathology and epidemiology...
-
Understanding facilitators of research participation among adults with self-reported chronic pain – a survey examining hypothetical research participation
BackgroundAn inability to successfully recruit participants into clinical research has consequences that negatively affect the conduct and...
-
Evolution of public funding since primary care research was considered as a priority research domain in france
PurposeAnnually, the French Ministry of Health funds clinical research projects based on a national call for projects. Since 2013, the Ministry has...
-
Frontline Clinician Appraisement of Research Engagement: “I feel out of touch with research”
BackgroundHealth services research can benefit from frontline clinician input across all stages of research, yet their key perspectives are often not...
-
Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic
BackgroundThere is significant value in co-produced health research, however power-imbalances within research teams can pose a barrier to people with...
-
Challenges regarding informed consent in recruitment to clinical research: a qualitative study of clinical research nurses’ experiences
BackgroundClinical research nurses (CRNs) have first-hand experience with ethical challenges and play a crucial role in upholding ethical conduct and...
-
Bridging the gap between research evidence and its implementation in public health practice: case studies of embedded research model
AimTo investigate the potential of embedded research in bridging the gap between research evidence and its implementation in public health practice.
... -
Behavioral sciences applied to acute care teams: a research agenda for the years ahead by a European research network
BackgroundMulti-disciplinary behavioral research on acute care teams has focused on understanding how teams work and on identifying behaviors...
-
Implementation and evaluation of participatory advisory boards in mental health research: a research protocol of the ‘PART-Beirat’ project
BackgroundThe use of participatory research approaches in the field of dementia and forensic mental health research has been on the rise. Advisory...
