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Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study
PurposeTo describe the process of delivery of pediatric palliative care from the perspective of a pediatric interdisciplinary team and the children’s...
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Knowledge, attitudes and practices of critical care unit personnel regarding pediatric palliative care: a cross-sectional study
BackgroundFew studies have evaluated the perceptions of healthcare providers in China regarding pediatric palliative care, particularly in critical...
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Programmatic Palliative Care Consultations in Pediatric Heart Transplant Evaluations
Guidelines advocate for integrating palliative care into the management of heart failure (HF) and of children with life-limiting disease. The...
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Healthcare personnel’s perspectives on health technology in home-based pediatric palliative care: a qualitative study
BackgroundIn the context of pediatric palliative care, where the quality of life of children with life-limiting or life-threatening conditions is of...
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Innovative communication approaches for initializing pediatric palliative care: perspectives of family caregivers and treating specialists
BackgroundEffective cooperation between a pediatric palliative care team (PPCT), primary treating specialists, patients and families is crucial for...
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Fetal outcomes and continuity in perinatal palliative care patients at a quaternary care pediatric hospital
ObjectivePerinatal palliative care (PPC) is the coordinated application of palliative care principles to the care of families, fetuses and newborns...
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The needs of healthcare personnel who provide home-based pediatric palliative care: a mixed method systematic review
BackgroundFamilies with children who have life-limiting or life-threatening illnesses often prefer to receive care at home to maintain a sense of...
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Chinese and Belgian pediatricians’ perspectives toward pediatric palliative care: an online survey
BackgroundAs pediatricians play a vital role in pediatric palliative care (PPC), understanding their perspectives toward PPC is important. PPC is...
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Expert survey on coverage and characteristics of pediatric palliative care in Europe – a focus on home care
BackgroundFor children with life-limiting conditions home care is a key component of pediatric palliative care. However, poor information is...
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Impact of Subspecialty Pediatric Palliative Care on Children with Heart Disease; A Systematic Review and Meta-analysis
While many experts in pediatric cardiology have emphasized the importance of palliative care involvement, very few studies have assessed the...
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Differences in the knowledge, attitudes, and needs of caregivers and healthcare providers regarding palliative care: a cross-sectional investigation in pediatric settings in China
BackgroundCountries abroad have implemented pediatric palliative treatment for several years; however, complete pediatric palliative treatment...
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The adult and pediatric palliative care: differences and shared issues
Adult and pediatric palliative care (PC) share common aims and ethical principles but differ in many organizational and practical aspects. The aim of...
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The impact of specialized pediatric palliative care on advance care planning and healthcare utilization in children and young adults: a retrospective analysis of medical records of in-hospital deaths
BackgroundPediatric palliative care supports children and young adults with life-limiting conditions and their families, seeking to minimize...
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“More life and more days”—patient and care characteristics in a specialized acute pediatric palliative care inpatient unit
Only a few acute hospital inpatient units dedicated to pediatric palliative care (PPC) patients exist today. Clinical data on the patients and care...
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The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers
BackgroundThe Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is...
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Children with cancer at the end of life in a middle-income country: integrated pediatric palliative care improves outcomes
BackgroundIn 2020, the Global Cancer Observatory reported 280,000 cases of childhood cancer worldwide, with a higher burden of disease and mortality...
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A shared decision-making model in pediatric palliative care: a qualitative study of healthcare providers
BackgroundPediatric shared decision-making (SDM) is a fundamental part of family-centered care. Pediatric palliative care (PPC) is one of the more...
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End of life in patients attended by pediatric palliative care teams: what factors influence the place of death and compliance with family preferences?
AbstractEach year, more than 8 million children worldwide require specialized palliative care, yet there is little evidence available in pediatrics...
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Advance care planning and the parental geographical background in pediatric palliative home care: a retrospective chart review
The relevance to acknowledge the parental migration history in pediatric palliative care is widely recognized. However, its influence on integral...
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Challenges in establishing optimal pediatric palliative care at the university hospital in Slovenia
The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening...
