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Training healthcare professionals to administer Goal Attainment Scaling as an outcome measure
BackgroundGoals generated by Goal Attainment Scaling (GAS) can be used as an outcome measure to promote person-centred research and care. There are...
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An aligned framework of actively collected and passively monitored clinical outcome assessments (COAs) for measure selection
Regulators increasingly require clinical outcome assessment (COA) data for approval. COAs can be collected via questionnaires or digital health...
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Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions
BackgroundUpper extremity (UE) involvement is prevalent in 73% of individuals with arthrogryposis multiplex congenita (AMC), yet no AMC-specific...
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Peak Edema Extension Distance: An Edema Measure Independent from Hematoma Volume Associated with Functional Outcome in Intracerebral Hemorrhage
BackgroundOur objective was to test the association between hematoma volume and long-term (> 72 h) edema extension distance (EED) evolution and the...
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Development of an addiction recovery patient-reported outcome measure: Response to Addiction Recovery (R2AR)
BackgroundRecovery, a primary goal of addiction treatment, goes beyond abstinence. Incorporating broad domains with key elements that vary across...
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Validation of the Peak Pruritus Numerical Rating Scale as a Patient-Reported Outcome Measure in Prurigo Nodularis
IntroductionValidated patient report tools for quantifying patient experiences of itch in prurigo nodularis (PN) are limited. This study aimed to...
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Validation of NASH-CHECK: a novel patient-reported outcome measure for nonalcoholic steatohepatitis
BackgroundStandardized measures for evaluating patients’ experiences with nonalcoholic steatohepatitis (NASH) and their perceived changes with...
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Measuring context that matters: validation of the modular Tele-QoL patient-reported outcome and experience measure
PurposeA setting-sensitive instrument for assessing Quality of Life (QoL) in Telemedicine (TM) was unavailable. To close this gap, a content-valid...
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Responsiveness and minimal important change of the Family Reported Outcome Measure (FROM-16)
BackgroundThe FROM-16 is a generic family quality of life (QoL) instrument that measures the QoL impact of patients’ disease on their family...
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Is there structural change on MRI in gluteal tendinopathy after treatment? Single outcome measure extension of an RCT
BackgroundThe etiology of tendinopathy remains controversial and it is unknown whether degenerative structural changes in tendinopathies are...
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Validation of the DIGEST-FEES as a Global Outcome Measure for Pharyngeal Dysphagia in Parkinson’s Disease
Flexible Endoscopic Evaluation of Swallowing (FEES) is one of two diagnostic gold standards for pharyngeal dysphagia in Parkinson's disease (PD),...
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Study protocol for Vascular Access outcome measure for function: a vaLidation study In hemoDialysis (VALID)
BackgroundA functioning vascular access (VA) is crucial to providing adequate hemodialysis (HD) and considered a critically important outcome by...
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Development of a Novel Patient-Reported Outcome Measure to Assess Symptoms and Impacts of Androgen Deprivation Therapy for Advanced Prostate Cancer
IntroductionThis qualitative research study was conducted to develop a novel, comprehensive, patient-reported outcome measure (PRO), the “Symptoms...
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Validation of the Investigator Global Assessment of Chronic Hand Eczema (IGA–CHE): a new clinician reported outcome measure of CHE severity
The Investigator Global Assessment of Chronic Hand Eczema (IGA–CHE) is a novel Clinician-Reported Outcome measure that allows investigators to assess...
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The Tardive Dyskinesia Impact Scale (TDIS), a novel patient-reported outcome measure in tardive dyskinesia: development and psychometric validation
BackgroundTardive dyskinesia (TD), a movement disorder in which patients experience abnormal involuntary movements, can have profound negative...
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Modification of an outcome measure to follow symptoms of children with acute otitis media
BackgroundTo modify a parent-reported acute otitis media severity of symptoms scale (AOM-SOS) to ensure that it accurately reflects parental concerns.
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Assessing the patient experience of respiratory syncytial virus infection: development of a patient-reported outcome measure
BackgroundRespiratory syncytial virus (RSV) causes significant morbidity and mortality in older adults. Despite a number of RSV vaccine candidates in...
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Italian cross-cultural adaptation of the patient-reported outcome measure of ataxia
BackgroundThe patient-reported outcome measure of ataxia (PROM-Ataxia) is the first patient-reported questionnaire specifically developed for use in...
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Feasibility of Goal Attainment Scaling as a patient-reported outcome measure for older patients in primary care
BackgroundGoal Attainment Scaling (GAS) is an outcome measure that reflects the perspectives and experiences of patients, consistent with...
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