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Facilitating and supporting the engagement of patients, families and caregivers in research: the “Ottawa model” for patient engagement in research
BackgroundPatient engagement is increasingly being recognized as a critical component of health research; however, institutional models for building...
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Patients’ and providers’ perspectives on the decision to undergo non-urgent egg freezing: a needs assessment
BackgroundPrevious research has demonstrated that patients have difficulty with the decision to undergo non-urgent egg freezing (EF). This study...
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The co-development of a linguistic and culturally tailored tele-retinopathy screening intervention for immigrants living with diabetes from China and African-Caribbean countries in Ottawa, Canada
BackgroundDiabetic retinopathy is a sight-threatening ocular complication of diabetes. Screening is an effective way to reduce severe complications,...
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Develo** a web-based oncofertility tool for reproductive-age women with breast cancer based on social support framework
PurposeTo develop electronic systems for oncofertility support, and to examine the comprehensibility, feasibility, usability, and effects on social...
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Assessing the feasibility, acceptability, and fidelity of a tele-retinopathy-based intervention to encourage greater attendance to diabetic retinopathy screening in immigrants living with diabetes from China and African-Caribbean countries in Ottawa, Canada: a protocol
BackgroundDiabetic retinopathy is a leading cause of preventable blindness in Canada. Clinical guidelines recommend annual diabetic retinopathy...
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Development and user testing of a patient decision aid for cancer patients considering treatment for anxiety or depression
BackgroundDespite high rates of mental health disorders among cancer patients, uptake of referral to psycho-oncology services remains low. This study...
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Judgement and Decision Making in Clinical and Return-to-Sports Decision Making: A Narrative Review
Making return-to-sport decisions can be complex and multi-faceted, as it requires an evaluation of an individual’s physical, psychological, and...
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Using Patient Decision Aids for Cardiology Care in Diverse Populations
Purpose of ReviewPatient decision aids (PDAs) are tools that help guide treatment decisions and support shared decision-making when there is...
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Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation
BackgroundEmerging adults with early psychosis demonstrate high rates of service disengagement from critical early intervention services. Decision...
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Providers’ perspectives on the reproductive decision-making of BRCA-positive women
BackgroundReproductive decision-making is difficult for BRCA-positive women. Our objective was to assess the complexities of decision-making and...
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The development of a decision aid to support Hodgkin lymphoma survivors considering lung cancer screening
BackgroundDecisions aids (DA) can support patients to make informed decisions about screening tests. This study describes the development and initial...
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“I’d like more options!”: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis
BackgroundJuvenile idiopathic arthritis (JIA) is a common pediatric rheumatic condition and is associated with symptoms such as joint pain that can...
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An innovative web-based decision-aid about birth after cesarean for shared decision making in Taiwan: study protocol for a randomized control trial
BackgroundTaiwan has a high national caesarean rate coupled with a low vaginal birth after caesarean (VBAC) rate. This study aims to develop and...
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Implementing shared decision-making interventions in breast cancer clinical practice: a sco** review
BackgroundShared decision-making (SDM) is a collaborative process whereby patients and clinicians jointly deliberate on the best treatment option...
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Decision-making and related outcomes of patients with complex care needs in primary care settings: a systematic literature review with a case-based qualitative synthesis
BackgroundIn primary care, patients increasingly face difficult decisions related to complex care needs (multimorbidity, polypharmacy, mental health...
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Shared Decision-Making and Family Meetings in Neurocritical Care
Purpose of ReviewShared decision-making (SDM) can enhance communication between healthcare providers and families in neurocritical care units...
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Effectiveness of patient decision aids in patients with advanced kidney disease: a meta-analysis based on randomized controlled trials
PurposeTo systematically evaluate the decision effectiveness of patient decision aids (PtDAs) on the decision-making effect of patients with advanced...
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Co-production of a systematic review on decision coaching: a mixed methods case study within a review
BackgroundCo-production is a collaborative approach to prepare, plan, conduct, and apply research with those who will use or be impacted by research...
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Status quo of advanced cancer patients participating in shared decision-making in China: a mixed study
PurposePatients with advanced cancer are usually willing to participate in shared decision-making (SDM), but in clinical practice, patient...
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Shared decision-making and planning end-of-life care for patients with end-stage kidney disease: a protocol for develo** and testing a complex intervention
BackgroundInternationally, it has been stressed that advance care planning integrated within kidney services can lead to more patients being involved...