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Map** of Alzheimer’s disease related data elements and the NIH Common Data Elements
BackgroundAlzheimer’s Disease (AD) is a devastating disease that destroys memory and other cognitive functions. There has been an increasing research...
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Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group on Physiology and Big Data
BackgroundThe implementation of multimodality monitoring in the clinical management of patients with disorders of consciousness (DoC) results in...
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Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group on Biospecimens and Biomarkers
BackgroundIn patients with disorders of consciousness (DoC), laboratory and molecular biomarkers may help define endotypes, identify therapeutic...
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Common Data Elements for Disorders of Consciousness: Recommendations from the Electrophysiology Working Group
BackgroundElectroencephalography (EEG) has long been recognized as an important tool in the investigation of disorders of consciousness (DoC). From...
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Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group on Behavioral Phenoty**
BackgroundThe recent publication of practice guidelines for management of patients with disorders of consciousness (DoC) in the United States and...
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Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group in the Pediatric Population
BackgroundThe fundamental gap obstructing forward progress of evidenced-based care in pediatric and neonatal disorders of consciousness (DoC) is the...
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Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group on Hospital Course, Confounders, and Medications
The convergence of an interdisciplinary team of neurocritical care specialists to organize the Curing Coma Campaign is the first effort of its kind...
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Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group on Neuroimaging
BackgroundOver the past 5 decades, advances in neuroimaging have yielded insights into the pathophysiologic mechanisms that cause disorders of...
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Common Data Elements for Disorders of Consciousness: Recommendations from the Working Group on Goals-of-Care and Family/Surrogate Decision-Maker Data
BackgroundTo facilitate comparative research, it is essential for the fields of neurocritical care and rehabilitation to establish common data...
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Common Data Elements Analysis of Mechanical Thrombectomy Clinical Trials for Acute Ischemic Stroke with Large Core Infarct
BackgroundClinical trials addressing large core acute ischemic stroke (AIS) are ongoing across multiple international groups. Future development of...
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Common design and data elements on rectal artery embolization for treatment of symptomatic internal hemorrhoidal disease: an interactive systematic review of clinical trials
BackgroundInternal hemorrhoids (IH) is a common medical condition that can result in morbidity secondary to bleeding and discomfort. Treatment for IH...
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Recommended data elements for health registries: a survey from a German funding initiative
BackgroundThe selection of data elements is a decisive task within the development of a health registry. Having the right metadata is crucial for...
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The key role of major and trace elements in the formation of five common urinary stones
BackgroundUrolithiasis has emerged as a global affliction, recognized as one of the most excruciating medical issues. The elemental composition of...
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Learning debiased graph representations from the OMOP common data model for synthetic data generation
BackgroundGenerating synthetic patient data is crucial for medical research, but common approaches build up on black-box models which do not allow...
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Development of Medical Imaging Data Standardization for Imaging-Based Observational Research: OMOP Common Data Model Extension
The rapid growth of artificial intelligence (AI) and deep learning techniques require access to large inter-institutional cohorts of data to enable...
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Capturing critical data elements in Juvenile Idiopathic Arthritis: initiatives to improve data capture
BackgroundDocumentation of critical data elements is a focus of the Pediatric Rheumatology Care and Outcomes Improvement Network to aid in clinical...