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Showing 81-100 of 359 results

  1. Emotional processes and stress in children affected by hereditary angioedema with C1-inhibitor deficiency: a multicenter, prospective study

    Background

    Hereditary angioedema with C1-inhibitor deficiency (C1-INH-HAE) is characterized by recurrent edema of unpredictable frequency and...

    Livia Savarese, Maria Bova, ... Maria Francesca Freda in Orphanet Journal of Rare Diseases
    Article Open access 13 July 2018

  4. Disease-specific health related quality of life patient reported outcome measures in Genodermatoses: a systematic review and critical evaluation

    Background

    Health Related Quality of Life (HR-QoL) Patient reported outcome measures (PROMs) have high utility in evaluation of new interventions in...

    John W. Frew, Mark Davidson, Dedee F. Murrell in Orphanet Journal of Rare Diseases
    Article Open access 29 December 2017

  5. Value co-creation in healthcare: evidence from innovative therapeutic alternatives for hereditary angioedema

    Background

    Our research focuses on the co-creation of value in healthcare with reference to a case of hereditary angioedema with C1 inhibitor...

    Rosanna Spanò, Nadia Di Paola, ... Alessandro Barbarino in BMC Health Services Research
    Article Open access 20 July 2018

  9. Abstracts

    Shiv Sarin in Hepatology International
    Article 05 April 2024

  10. Abstracts from the 10th C1-inhibitor deficiency workshop

    Alvin H. Schmaier, Marco Cicardi, ... A. Z. Sin in Allergy, Asthma & Clinical Immunology
    Article Open access 15 June 2017

  11. An open-label study to evaluate the long-term safety and efficacy of lanadelumab for prevention of attacks in hereditary angioedema: design of the HELP study extension

    Background

    Hereditary angioedema (HAE) is characterized by recurrent attacks of subcutaneous or submucosal edema. Attacks are unpredictable,...

    Marc A. Riedl, Jonathan A. Bernstein, ... Paula J. Busse in Clinical and Translational Allergy
    Article Open access 06 October 2017

  12. Abstract

    in Hepatology International
    Article 27 June 2022

  16. Abstracts

    in Hepatology International
    Article 20 March 2024

  17. Abstract

    in Hepatology International
    Article 01 March 2021

  18. Hereditary angioedema: health-related quality of life in Canadian patients as measured by the SF-36

    Background

    Hereditary angioedema (HAE) is a rare but serious condition characterized by recurrent spontaneous attacks of angioedema affecting...

    Nina Lakhani **dal, Elaine Harniman, ... Stephen Betschel in Allergy, Asthma & Clinical Immunology
    Article Open access 19 January 2017
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