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Studying the post-COVID-19 condition: research challenges, strategies, and importance of Core Outcome Set development
BackgroundA substantial portion of people with COVID-19 subsequently experience lasting symptoms including fatigue, shortness of breath, and...
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Towards a core outcome set (COS) for intrinsic capacity (IC) intervention studies in adults in midlife and beyond: a sco** review to identify frequently used outcomes and measurement tools
This sco** review was conducted to identify the outcomes and measurement tools used in IC intervention studies, as first step towards the...
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Analysis of outcome reporting in common peroneal neuropathy studies: a systematic review of the literature
BackgroundThere is a strong need for the development of core outcome sets (COS) across nerve surgery to allow for improved data synthesis,...
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How to reach agreement: the impact of different analytical approaches to Delphi process results in core outcomes set development
BackgroundCore outcomes sets are increasingly used to define research outcomes that are most important for a condition. Different consensus methods...
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Co-producing a multi-stakeholder Core Outcome Set for distal Tibia and Ankle fractures (COSTA): a study protocol
BackgroundAnkle fracture is a common injury with a strong evidence base focused on effectiveness of treatments. However, there are no reporting...
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An international Delphi consensus process to determine a common data element and core outcome set for frailty: FOCUS (The Frailty Outcomes Consensus Project)
BackgroundDespite increased recognition of frailty and its importance, high quality evidence to guide decision-making is lacking. There has been...
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Balancing adaptability and standardisation: insights from 27 routinely implemented ICHOM standard sets
BackgroundHealthcare systems around the world experience increasing pressure to control future growth of healthcare expenditures. Among other...
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The participatory development of a national core set of person-centred diabetes outcome constructs for use in routine diabetes care across healthcare sectors
BackgroundThis study sought to utilise participatory research methods to identify the perspectives of people with diabetes regarding which diabetes...
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Development of a core outcome set for effectiveness studies of breech birth at term (Breech-COS)—an international multi-stakeholder Delphi study: study protocol
BackgroundWomen pregnant with a breech-presenting foetus at term are at increased risk of adverse pregnancy outcomes. The most common intervention...
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Core outcome sets through the healthcare ecosystem: the case of type 2 diabetes mellitus
BackgroundIt is increasingly accepted that insufficient attention has been given to the patient health outcomes that are important to measure in...
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Exploring the perspectives of selectors and collecters of trial outcome data: an international qualitative study
IntroductionSelecting and collecting data to support appropriate primary and secondary outcomes is a critical step in designing trials that can...
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Study protocol: a core outcome set for perinatal interventions for congenital diaphragmatic hernia
BackgroundCongenital diaphragmatic hernia (CDH) is, depending of the severity, a birth defect associated with significant mortality and morbidity....
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Identifying outcomes and outcome measures in neonatal family-centered care trials: a systematic review
BackgroundA wide range of outcomes for infants and parents has been reported in clinical trials testing FCC interventions. This systematic review...
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Postinflammatory hyperpigmentation: protocol for development of a core outcome set for clinical trials
Postinflammatory hyperpigmentation (PIH) is a disorder of pigmentation that is a common presenting complaint, especially in individuals with skin of...
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Core outcomes for speech-language services in Ontario schools: a group concept map** study and guiding framework
BackgroundEstablishing the most important outcomes for school-based speech-language therapy is essential to guide future research and program...
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Analysis of outcome reporting in sciatic neuropathy studies: a systematic review of the literature
PurposeAs a first step towards develo** a core outcome set (COS) for sciatic neuropathy, the goal of the current study was to perform a systematic...
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Methodology in core outcome set (COS) development: the impact of patient interviews and using a 5-point versus a 9-point Delphi rating scale on core outcome selection in a COS development study
BackgroundAs the development of core outcome sets (COS) increases, guidance for develo** and reporting high-quality COS continues to evolve;...
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Measurement properties of the Swedish clinical outcomes in routine evaluation outcome measures (CORE-OM): Rasch analysis and short version for depressed and anxious out-patients in a multicultural area
IntroductionThe Swedish version of the patient-reported Clinical Outcomes in Routine Evaluation Outcome Measures (CORE-OM) has demonstrated high...
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Development of a Bariatric Surgery Core Data Set for an International Registry
PurposeBariatric and metabolic surgery is an effective treatment for severe and complex obesity; however, robust long-term data comparing operations...
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Standardized approach to extract candidate outcomes from literature for a standard outcome set: a case- and simulation study
AimsStandard outcome sets enable the value-based evaluation of health care delivery. Whereas the attainment of expert opinion has been structured...
