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  1. Article

    Open Access

    Spatial distribution of fat infiltration within the paraspinal muscles: implications for chronic low back pain

    Fat infiltration (FI) of the paraspinal muscles (PSMs) measured using MRI is an aspect of muscle quality and is considered to be worse in chronic low back pain (cLBP) patients. However, there is not a clear as...

    Karim Khattab, Lucas K. Dziesinski, Rebecca Crawford in European Spine Journal (2022)

  2. Article

    Open Access

    Development and content validation of a self-completed, electronic Pediatric Asthma Symptom Diary

    Childhood asthma is an important unmet need. To date, patient-reported outcome measures (PROMs) for children with asthma have used a combination of caregiver or proxy-reported and self-reported measures. No co...

    Marci Clark, Carla Romano, Oyebimpe Olayinka-Amao in Journal of Patient-Reported Outcomes (2022)

  3. Article

    Open Access

    Development of the Pulmonary Hypertension Functional Classification Self-Report: a patient version adapted from the World Health Organization Functional Classification measure

    Pulmonary arterial hypertension (PAH) is characterized by progressive limitations on physical activity, right heart failure, and premature death. The World Health Organization functional classification (WHO-FC...

    Kristin B. Highland, Rebecca Crawford, Peter Classi in Health and Quality of Life Outcomes (2021)

  4. Article

    Open Access

    Correction to: Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS sleep disturbance and sleep-related impairment measures for assessment of VMS impact on sleep

    Marci English, Boyka Stoykova, Christina Slota in Journal of Patient-Reported Outcomes (2021)

  5. Article

    Open Access

    Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS Sleep Disturbance and Sleep-Related Impairment measures for assessment of VMS impact on sleep

    We evaluated the impact of menopause-associated vasomotor symptoms (VMS) on sleep. We also sought to establish the content validity of Patient-Reported Outcomes Measurement Information System (PROMIS) short fo...

    Marci English, Boyka Stoykova, Christina Slota in Journal of Patient-Reported Outcomes (2021)

  6. Article

    Open Access

    Patient and healthcare professional experiences of the Salford Lung Studies: qualitative insights for future effectiveness trials

    Randomized controlled trials (RCTs) conducted in the routine care setting provide the opportunity to better understand the effectiveness of new medicines but can present recruitment difficulties. An improved u...

    Kim Gemzoe, Rebecca Crawford, Ann Caress, Sheila McCorkindale, Rebecca Conroy in Trials (2020)

  7. Article

    Open Access

    Patient-Centered Insights on Treatment Decision Making and Living with Acute Myeloid Leukemia and Other Hematologic Cancers

    Expectations relating to treatment and survival, and factors influencing treatment decisions are not well understood in adult patients with acute myeloid leukemia. This study analyzed combined findings from a ...

    Rebecca Crawford, Kate Sully, Rebecca Conroy in The Patient - Patient-Centered Outcomes Re… (2020)

  8. Article

    Open Access

    A descriptive follow-up interview study assessing patient-centred outcomes: Salford Lung Study in Asthma (SLS Asthma)

    The Salford Lung Study in Asthma (SLS Asthma) was a multicentre, randomised, controlled, open-label trial that assessed initiating once-daily, single-inhaler fluticasone furoate/vilanterol (FF/VI) 100 μg/25 μg...

    Lynda Doward, Henrik Svedsater, Diane Whalley in npj Primary Care Respiratory Medicine (2019)

  9. Article

    Open Access

    Follow-up interviews from The Salford Lung Study (COPD) and analyses per treatment and exacerbations

    The Salford Lung Study in chronic obstructive pulmonary disease (SLS COPD) was a 12-month, Phase III, open-label, randomised study comparing the effectiveness and safety of initiating once-daily fluticasone fu...

    Diane Whalley, Henrik Svedsater, Lynda Doward in npj Primary Care Respiratory Medicine (2019)

  10. Article

    Open Access

    Traditional knowledge-based lifestyle interventions in the prevention of obesity and type 2 diabetes in Indigenous children in Canada: a systematic review protocol

    Approximately 50% of all youth-onset type 2 diabetes mellitus (T2DM) in Canada occurs in Indigenous children. In adults, cardiovascular disease is one of the leading causes of mortality in First Nations commun...

    Rebecca Crawford, E. Danielle Sims, Kuan-Wen Wang, Michael Youssef in Systematic Reviews (2019)

  11. Article

    Open Access

    Is the EQ-5D fit for purpose in asthma? Acceptability and content validity from the patient perspective

    The increasing emphasis on patient-reported outcomes in health care decision making has prompted greater rigor in the evidence to support the instruments used. Acceptability and content validity are important ...

    Diane Whalley, Gary Globe, Rebecca Crawford in Health and Quality of Life Outcomes (2018)

  12. Article

    Open Access

    Salford Lung Study in chronic obstructive pulmonary disease (SLS COPD): follow-up interviews on patient-centred outcomes

    This study investigated patient perceptions, experiences and management of COPD throughout the SLS COPD study. Follow-up interviews were conducted with 400 patients who completed SLS COPD; a mixed-methods appr...

    Lynda Doward, Henrik Svedsater, Diane Whalley in npj Primary Care Respiratory Medicine (2017)