6 Result(s)

Article

Development and content validation of a self-completed, electronic Pediatric Asthma Symptom Diary

Childhood asthma is an important unmet need. To date, patient-reported outcome measures (PROMs) for children with asthma have used a combination of caregiver or proxy-reported and self-reported measures. No co...

Marci Clark, Carla Romano, Oyebimpe Olayinka-Amao… in Journal of Patient-Reported Outcomes (2022)

Article

Development of the Pulmonary Hypertension Functional Classification Self-Report: a patient version adapted from the World Health Organization Functional Classification measure

Pulmonary arterial hypertension (PAH) is characterized by progressive limitations on physical activity, right heart failure, and premature death. The World Health Organization functional classification (WHO-FC...

Kristin B. Highland, Rebecca Crawford, Peter Classi… in Health and Quality of Life Outcomes (2021)

Article

Correction to: Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS sleep disturbance and sleep-related impairment measures for assessment of VMS impact on sleep

Marci English, Boyka Stoykova, Christina Slota… in Journal of Patient-Reported Outcomes (2021)

Article

Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS Sleep Disturbance and Sleep-Related Impairment measures for assessment of VMS impact on sleep

We evaluated the impact of menopause-associated vasomotor symptoms (VMS) on sleep. We also sought to establish the content validity of Patient-Reported Outcomes Measurement Information System (PROMIS) short fo...

Marci English, Boyka Stoykova, Christina Slota… in Journal of Patient-Reported Outcomes (2021)

Article

Patient-Centered Insights on Treatment Decision Making and Living with Acute Myeloid Leukemia and Other Hematologic Cancers

Expectations relating to treatment and survival, and factors influencing treatment decisions are not well understood in adult patients with acute myeloid leukemia. This study analyzed combined findings from a ...

Rebecca Crawford, Kate Sully, Rebecca Conroy… in The Patient - Patient-Centered Outcomes Re… (2020)

Article

Is the EQ-5D fit for purpose in asthma? Acceptability and content validity from the patient perspective

The increasing emphasis on patient-reported outcomes in health care decision making has prompted greater rigor in the evidence to support the instruments used. Acceptability and content validity are important ...

Diane Whalley, Gary Globe, Rebecca Crawford… in Health and Quality of Life Outcomes (2018)