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  1. No Access

    Article

    Assessment of content validity for patient-reported outcome measures used in patients with non-muscle invasive bladder cancer: a systematic review

    Non-muscle invasive bladder cancer (NMIBC) is a chronic condition requiring ongoing treatment and endoscopic examinations that are frequent and can be life-long. To ensure the comprehensive assessment of the b...

    Claudia Rutherford, Manish I. Patel, Margaret-Ann Tait… in Supportive Care in Cancer (2018)

  2. Article

    Correction to: Trials with patient-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR)

    In the original publication of the article, the sentence “The ANZCTR is the fifth largest trial registry internationally, with 21,330 registered trials as at January 2018 [5]” in the Introduction section was publ...

    Rebecca Mercieca-Bebber, Douglas Williams, Margaret-Ann Tait… in Quality of Life Research (2018)

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  3. No Access

    Article

    Trials with patient-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR)

    It is important to understand the number, types and regions of trials that include patient-reported outcomes (PROs) to appreciate how patient experiences have been considered in studies of health and intervent...

    Rebecca Mercieca-Bebber, Douglas Williams, Margaret-Ann Tait… in Quality of Life Research (2018)

  4. No Access

    Article

    Trials with proxy-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR)

    A proxy is someone other than a patient who reports a patient’s outcomes as if they are the patient. Due to known discordance with patient reports, proxies are often not recommended in clinical trials; however...

    Rebecca Mercieca-Bebber, Douglas Williams, Margaret-Ann Tait… in Quality of Life Research (2019)

  5. No Access

    Article

    Patient-reported outcomes in non-muscle invasive bladder cancer: a mixed-methods systematic review

    Non-muscle invasive bladder cancer (NMIBC) is a chronic condition requiring repeated treatment and endoscopic examinations that can occur life-long. In this context, patient-reported outcomes (PROs) are import...

    Claudia Rutherford, Manish I. Patel, Margaret-Ann Tait… in Quality of Life Research (2021)

  6. No Access

    Article

    How is quality of life defined and assessed in published research?

    To ensure clarity in communication in the field of quality of life research, and meaningful use of ‘quality of life’ as a research outcome, requires two things: awareness that there is a range of conceptualisa...

    Daniel S. J. Costa, Rebecca Mercieca-Bebber, Claudia Rutherford… in Quality of Life Research (2021)

  7. Article

    Open Access

    Improving the patient-reported outcome sections of clinical trial protocols: a mixed methods evaluation of educational workshops

    Failure to incorporate key patient-reported outcome (PRO) content in trial protocols affects the quality and interpretability of the collected data, contributing to research waste. Our group developed evidence...

    Madeleine T. King, Margaret-Ann Tait, Rachel Campbell… in Quality of Life Research (2022)

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  8. Article

    Open Access

    Health-related quality of life of Australians during the 2020 COVID-19 pandemic: a comparison with pre-pandemic data and factors associated with poor outcomes

    Compare the health-related quality of life (HRQL) of the Australian general population during the COVID-19 pandemic (2020) with pre-pandemic data (2015–2016) and identify pandemic-related and demographic facto...

    Rebecca Mercieca-Bebber, Rachel Campbell, Dayna Jan Fullerton… in Quality of Life Research (2023)

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