Synonyms
Definition
DQoL is a 29-item instrument to be used as an interview with patients suffering from dementia in order to assess their perceived quality of life in several domains.
Description
Brod, Stewart, Sands, and Walton (1999b) developed DQoL as a patient-administered measure of the perceived quality of life of persons with mild or moderate levels of dementia (e.g., indexed by the mini-mental state examination (MMSE), Folstein, Folstein, and McHugh (1975): MMSE >= 13 in the original study; some applications include patients with an MMSE >= 10).
The construction of the instrument was based on a conceptual framework of quality of life in dementia; this was assisted by different focus groups (caregivers, healthcare providers, persons with dementia). Several pilot studies were conducted to decide about methodological aspects like formatting, item construction, and administration procedures in order to appropriately regard and respect the specific needs of dementia...
References
Adler, E., & Resnick, B. (2010). Reliability and validity of the dementia quality of life measure in nursing home residents. Western Journal of Nursing Research, 32(5), 686–704.
Alexopoulous, G. S., Abrams, R. C., Young, R. C., & Shamoian, C. A. (1988). Cornell scale for depression in dementia. Biological Psychiatry, 23, 271–248.
Bosboom, P., & Jonkers, K. (2001). Dutch version of the Dqol. Amsterdam: VU University.
Brod, M., Stewart, A. L., & Sands, L. (1999a). Conceptualization of quality of life in dementia. Journal of Mental Health and Aging, 5(1), 7–19.
Brod, M., Stewart, A. L., Sands, L., & Walton, P. (1999b). Conceptualization and measurement of quality of life in dementia: The Dementia Quality of Life Instrument (DQoL). The Gerontologist, 39(1), 25–35.
Cahill, S., Begley, E., Topo, P., Saarikalle, K., Macijauskiene, J., Budraitiene, A., et al. (2004). ‘I know where this is going and I know it won’t go back’: Hearing the individual’s voice in dementia quality of life assessments. Dementia: The International Journal of Social Research and Practice, 3(3), 313–330. https://doi.org/10.1177/1471301204045163.
Carpenter, B. D., Kissel, E. C., & Lee, M. M. (2007). Preferences and life evaluations of older adults with and without dementia: Reliability, stability, and proxy knowledge. Psychology and Aging, 22(3), 650–655. https://doi.org/10.1037/0882-7974.22.3.650.
Chiu, Y., Shyu, Y., Liang, J., & Huang, H. (2008). Measure of quality of life for Taiwanese persons with early to moderate dementia and related factors. International Journal of Geriatric Psychiatry, 23(6), 580–585.
Chiu, Y., Chiu, Y., Hsu, W., Lee, S., Chen, S., & Kao, H. (2010). Develo** a Chinese quality of life in dementia instrument for patients with early-to-moderate dementia: An exploratory test of validity. Journal of Clinical Nursing, 19(15–16), 2174–2184.
EuroQoL Group. (1990). EuroQoL: A new facility for the measurement of health related quality of life. Health Policy, 16, 199–208.
Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). Mini-Mental State (a practical method for grading the state of patients for the clinician). Journal of Psychiatric Research, 12, 189–198.
Graff, M. L., Vernooij-Dassen, M. M., Zajec, J., Olde-Rikkert, M. M., Hoefnagels, W. L., & Dekker, J. (2006). How can occupational therapy improve the daily performance and communication of an older patient with dementia and his primary caregiver? Dementia: The International Journal of Social Research and Practice, 5(4), 503–532.
Hornung, J. (2008). Lebensqualität von Demenzpatienten und deren Angehörigen [Quality of life of patients with dementia and their relatives]. Dissertation, Universität Hamburg. Retrieved 30 Aug 2011. http://d-nb.info/989410153/34
Karim, S. S., Ramanna, G. G., Petit, T. T., Doward, L. L., & Burns, A. A. (2008). Development of the Dementia Quality of Life Questionnaire (D-QOL): UK version. Aging & Mental Health, 12(1), 144–148. https://doi.org/10.1080/13607860701616341.
Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, L. (1999). Quality of life in Alzheimer’s disease: Patient and caregiver reports. Journal of Mental Health and Aging, 5(1), 21–32.
Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64(3), 510–519.
Lucas-Carrasco, R., Gómez-Benito, J., Rejas, J., & Brod, M. (2011a). The Spanish version of the dementia quality of life questionnaire: A validation study. Aging & Mental Health, 15(4), 482–489.
Lucas-Carrasco, R., Laidlaw, K., & Power, M. J. (2011b). Suitability of the WHOQOL-BREF and WHOQOL-OLD for Spanish older adults. Aging & Mental Health, 15(5), 595–604.
Mador, J., Clark, M., Crotty, M., & Hecker, J. (2002). Utility weighted measures of quality of life in Alzheimer disease. Alzheimer Disease and Associated Disorders, 16(3), 202.
Mahoney, F. I., & Barthel, D. W. (1965). Functional evaluation: The Barthel Index. Maryland State Medical Journal, 14, 61–65.
Moyle, W., Gracia, N., Murfield, J. E., Griffiths, S. G., & Venturato, L. (2012). Assessing quality of life of older people with dementia in long-term care: A comparison of two self-report measures. Journal of Clinical Nursing, 21(11–12), 1632–1640.
Novella, J. L., Jochum, C. C., Jolly, D. D., Morrone, I. I., Ankri, J. J., Bureau, F. F., et al. (2001). Agreement between patients’ and proxies’ reports of quality of life in Alzheimer’s disease. Quality of Life Research: an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 10(5), 443–452. https://doi.org/10.1023/A:1012522013817.
Ready, R. E., Ott, B. R., & Grace, J. (2004). Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer’s disease. International Journal of Geriatric Psychiatry, 19(3), 256–265. https://doi.org/10.1002/gps.1075.
Ready, R. E., Ott, B. R., & Grace, J. (2007). Factor structure of patient and caregiver ratings on the Dementia Quality of Life instrument. Aging, Neuropsychology, and Cognition, 14(2), 144–154.
Selai, C. E., Trimble, M. R., Rossor, M. N., & Harvey, R. J. (2001). Assessing quality of life in dementia: Preliminary psychometric testing of the Quality of Life Assessment Schedule (QOLAS). Neuropsychological Rehabilitation, 11(3–4), 219–243. https://doi.org/10.1080/09602010042000033.
Selwood, A., Thorgrimsen, L., & Orrell, M. (2005). Quality of life in dementia – A one-year follow-up study. International Journal of Geriatric Psychiatry, 20(3), 232–237.
Shankar, K. K., Walker, M., Frost, D., & Orrell, M. (1999). The development of a valid and reliable scale for rating anxiety in dementia (RAID). Aging and Mental Health, 3, 39–49.
Suzuki, M., Uchida, A., Kanamori, M., & Ooshiro, H. (2005). Development of the Dementia Quality of Life Instrument – Japanese version. Nihon Ronen Ihakkai Zasshi, 42(4), 423–431.
Thorgrimsen, L. L., Selwood, A. A., Spector, A. A., Royan, L. L., de Madariaga Lopez, M. M., Woods, R. T., et al. (2003). Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer’s Disease (QoL-AD) Scale. Alzheimer Disease and Associated Disorders, 17(4), 201–208. https://doi.org/10.1097/00002093-200310000-00002.
Torvik, K., Kaasa, S., Kirkevold, Ø., & Rustøen, T. (2010). Pain and quality of life among residents of Norwegian nursing homes. Pain Management Nursing, 11(1), 35–44.
Voigt-Radloff, S., Leonhart, R., Schützwohl, M., Jurjanz, L., Reuster, T., Gerner, A., Marschner, K., van Nes, F., Graff, M., Vernooij-Dassen, M., Rikkert, M. O., Holthoff, V., & Hüll, M. (2012). Dementia quality of life instrument – Construct and concurrent validity in patients with mild to moderate dementia. European Journal of Neurology, 19(3), 376–384.
Wolak-Thierry, A., Novella, J. L., Barbe, C., Morrone, I., Mahmoudi, R., & Jolly, D. (2015). Comparison of QoL-AD and DQoL in elderly with Alzheimer’s disease. Aging & Mental Health, 19(3), 274–278.
Yesavage, J., Brink, T., & Rose, T. (1983). Development and validation of a geriatric depression scale: A preliminary report. Journal of Psychiatry Research, 17, 37–49.
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Schmidt, K. (2023). Dementia Quality of Life Instrument. In: Maggino, F. (eds) Encyclopedia of Quality of Life and Well-Being Research. Springer, Cham. https://doi.org/10.1007/978-3-031-17299-1_689
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