Abstract
The demographics of the United States, and of the world, are rapidly changing; national and racial diversity is increasing and bifurcation of socioeconomic status continues. These societal patterns highlight the tensions and hopeful possibilities inherent in the science and practice of behavior analysis. In this paper, we review the general climate surrounding diverse populations and access to care, characterize the demographics of behavior analysis and leadership, and discuss the synergistic activities two related disciplines, public health and anthropology, may contribute toward social justice. We conclude with recommendations and goals for increasing cultural responsiveness in the study and practice of behavior analysis. Such responsiveness is likely to allow advances in our understanding of how behavior changes and what meaning those changes have for individuals and society.
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Abell, M. L., Manuel, J., & Schoeneman, A. (2015). Student attitudes towards religious diversity and implications for multicultural competence. Journal of Religion and Spirituality in Social Work, 34(1), 91–104. https://doi.org/10.1080/15426432.2014.943920.
Allen, J. S., & Jobson, R. C. (2016). The decolonizing generation: Race and theory in anthropology since the eighties. Current Anthropology, 57(2), 129–148. https://doi.org/10.1086/685502.
Angell, A. M., Frank, G., & Solomon, O. (2016). Latino families’ experiences with autism services: Disparities, capabilities, and occupational justice. OTJR: Occupation, Participation and Health, 36(4), 195–203. https://doi.org/10.1177/1539449216666062.
Annamma, S. A., Conner, D., & Ferri, B. (2013). Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability. Race Ethnicity and Education, 16(1), 1–31. https://doi.org/10.1080/13613324.2012.730511.
Baer, D. M., Wolf, M. M., & Risley, T. R. (1968). Some current dimensions of applied behavior analysis. Journal of Applied Behavior Analysis, 1(1), 91–97. https://doi.org/10.1901/jaba.1987.20-313.
Baer, H. A., Singer, M., & Susser, I. (2004). Medical anthropology and the world system (2nd ed.). Westport, CT: Praeger.
Bagatell, N. (2007). Orchestrating voices: Autism, identity and the power of discourse. Disability and Society, 22(1), 413–426. https://doi.org/10.1080/09687590701337967.
Bassey, M. O. (2016). Culturally responsive teaching. Education in Science, 6(4), 35. https://doi.org/10.3390/educsci6040035.
Beaulieu, L., Addington, J., & Almeida, D. (2018). Behavior analysts’ training and practices regarding cultural diversity: The case for culturally competent care. Behavior Analysis in Practice. Advance online publication. https://doi.org/10.1007/s40617-018-00313-6.
Behavior Analyst Certification Board. (2014). Professional and ethical compliance codefor behavior analysts. Littleton, CO: author.
Berkeley Department of African American Studies. (2018). Regents of the University of California. Retrieved October 24, 2018, from https://africam.berkeley.edu/about-the-program
Bernal, B. (2006). Intervention development and cultural adaptation research with diverse families. Family Process, 45(2), 143–151. https://doi.org/10.1111/j.1545-5300.2006.00087.x.
Bernard, R. (2018). Research methods anthropology: Qualitative and quantitative (6th ed.). Lanham, MD: Rowan and Littlefield.
Betancourt, J. R., Green, A. R., & Carrillo, J. E. (2002). Cultural competence in health care: Emerging frameworks and practical approaches. New York, NY: Commonwealth Fund, Quality of Care for Underserved Populations.
Boyle, C. A., Boulet, S., Schieve, L. A., Cohen, R. A., Blumberg, S. J., Yeargin-Allsopp, M., . . . Kogen, M. D. (2011). Trends in the prevalence of developmental disabilities in U.S. children, 1997–2008. Pediatrics, 127, 1034–1042. https://doi.org/10.1542/peds.2010-2989
Castro, A., & Singer, M. (2004). Unhealthy health policies: A critical anthropological examination. Walnut Creek, CA: AltaMira Press.
Center for Community Health and Development. (2017). Cultural competence in a multicultural world. In The community tool box (Chapter 27). Lawrence, KS: University of Kansas. Retrieved May 23, 2018, from https://ctb.ku.edu/en/table-of-contents/culture/cultural-competence
Chen, E., Martin, A. D., & Matthews, K. A. (2006). Understanding health disparities: The role of race and socioeconomic status in children’s health. American Journal of Public Health, 96(4), 702–708. https://doi.org/10.2105/AJPH.2004.048124.
Cohn, D., & Caumont, A. (2016). 10 demographic trends that are sha** the U.S. and the world. Pew Research Center. Retrieved from http://www.mrjonesteach.com/uploads/8/8/5/0/88506174/10_demographic_trends.pdf
Cooper, J. O., Heron, T. E., & Heward, W. L. (2007). Applied behavior analysis (2nd ed.). Upper Saddle River, NJ: Pearson.
Cross, T. L., Bazron, B. J., Dennin, K. W., & Isaacs, M. R. (1989). Towards a culturally competent system of care: A monograph on effective services for minority children who are severely emotionally disturbed. Washington, DC: CASSP Technical Assistance Center, & Georgetown University Child Development Center.
Danso, R. (2015). An integrated framework of critical cultural competence and anti-oppressive practice for social justice social work research. Qualitative Social Work, 14(4), 572–588. https://doi.org/10.1177/1473325014558664.
Durkin, M. S., Maenner, M. J., Baio, J., Christensen, D., Daniels, J., Fitzgerald, R., & Imm, P. (2017, November). Autism spectrum disorder among US children (2002–2010): Socioeconomic, racial, and ethnic disparities. American Journal of Public Health. Retrieved September 25, 2018, from https://ajph.aphapublications.org/doi/10.2105/AJPH.2017.304032
Durkin, M. S., Maenner, M. J., Meaney, F. J., Levy, S. E., DiGuiseppi, C., Nicholas J. S., . . . Schieve, L. A. (2010). Socioeconomic inequality in the prevalence of autism spectrum disorder: Evidence from a U.S. cross-sectional study. PLoS One, 5(7), e11551. https://doi.org/10.1371/journal.pone.0011551
Fawcett, S. B. (1991). Some value guiding community research and action. Journal of Applied Behavior Analysis, 24(4), 621–636. https://doi.org/10.1901/jaba.1991.24-621.
Finney, J. W. (1991). On further development of the concept of social validity. Journal of Applied Behavior Analysis, 24(2), 245–249. https://doi.org/10.1901/jaba.1991.24-245.
Fisher-Borne, M., Montana Cain, J. & Martin, S. L. (2015). From mastery toaccountability: Cultural humility as an alternative to cultural competence. Social Work Education, 34(2), 165–181. https://doi.org/10.1080/02615479.2014.977244.
Fong, E. H., Catagnus, R. M., Brodhead, M. T., Quigley, S., & Field, S. (2016). Develo** the cultural awareness skills of behavior analysts. Behavior Analysis in Practice, 9(1), 84–94. https://doi.org/10.1007/s40617-016-0111-6.
Fong, E. H., Ficklin, S., & Lee, H. Y. (2017). Increasing cultural understanding and diversity in applied behavior analysis. Behavior Analysis: Research and Practice, 17(2), 103–113. https://doi.org/10.1037/bar0000076.
Fong, E. H., & Tanaka, S. (2013). Multicultural alliance of behavior analysis standards for cultural competence in behavior analysis. International Journal of Behavioral Consultation and Therapy, 8(2), 17–19. https://doi.org/10.1037/h0100970.
Fuchs, C., Lee, J. K., Roemer, L., & Orsillo, S. M. (2013). Using mindfulness- and acceptance-based treatments with clients from nondominant cultural and/or marginalized backgrounds. Cognitive and Behavioral Practice, 20(1), 1–12. https://doi.org/10.1016/j.cbpra.2011.12.004.
Goode, T. D., & Dunne, C. (2003). Rationale for cultural competence in primary health care. Washington, DC: National Center for Cultural Competence.
Greenwood, D. J., & Levin, M. (1998). Introduction to action research: Social research for social change. Thousand Oaks, CA: Sage.
Harris, B., Barton, E. E., & Albert, C. (2014). Evaluating autism diagnostic and screening tools for cultural and linguistic responsiveness. Journal of Autism and Developmental Disorders, 44(6), 1275–1287. https://doi.org/10.1007/s10803-013-1991-8.
Hawley, D. R., & DeHaan, L. (1996). Toward a definition of family resilience: Integrating lifespan and family perspectives. Family Process, 35(3), 283–298. https://doi.org/10.1111/j.1545-5300.1996.00283.x.
Hemphill, B. (2015). Social justice as a moral imperative. The Open Journal of Occupational Therapy 3(2), article 9. https://doi.org/10.15453/2168-6408.1150.
Henrich, J., Heine, S. J., & Norenzayan, A. (2010). The weirdest people in the world? Behavioral and Brain Sciences, 33, 61–135. https://doi.org/10.1017/S0140525X0999152X.
Hook, J. N., Davis, D. E., Owen, J., Worthington, E. L., & Utsey, S. O. (2013). Cultural humility: Measuring openness to culturally diverse clients. Journal of Counseling Psychology, 60(3), 353–366. https://doi.org/10.1037/a0032595.
Institute of Medicine Committee on Quality of Healthcare in America. (2001). Crossing the quality chasm: A new health system for the 21st century. Washington, DC: National Academies Press.
Johnson, L. B. (1964). Remarks in Athens at Ohio University. Online by Gerhard Peters and John T. Woolley, The American Presidency Project, University of California, Santa Barbara. Retrieved October 24, 2018, from http://www.presidency.ucsb.edu/ws/?pid=26225
Johnston, B. R., & Downing, C. J. (2004). The Pehuenche: Human rights, the environment, and hydro development on the Biobio River, Chile. In H. Feit & M. Blaser (Eds.), Indigenous peoples, development, and environment (pp. 211–231). London, UK: Zed Books.
Keenan, M., Dillenburger, K., Moderato, P., & Röttgers, H. R. (2010). Science for sale in a free market economy: But at what price? ABA and the treatment of autism in Europe. Behavior and Social Issues, 19, 126–143. https://doi.org/10.5210/bsi.v19i0.2879.
King, W. D. (2003). Examining African Americans’ mistrust of the healthcare system: Expanding the research question: Commentary on “Race and trust in the health care system.”. Public Health Reports, 118(4), 366–367. https://doi.org/10.1093/phr/118.4.366.
LaRoche, M., & Christopher, M. S. (2008). Culture and empirically supported treatments: On the road to collision? Culture & Psychology, 14(3), 333–346. https://doi.org/10.1177/1354067X08092637.
LaRoche, M., & Lustig, K. (2013). Being mindful about the assessment of culture: A cultural analysis of culturally adapted acceptance-based behavior therapy approaches. Cognitive and Behavioral Practice, 20(1), 60–63. https://doi.org/10.1016/j.cbpra.2012.04.002.
LaRue, R. (2013). Functional Assessment Screening Tool (FAST). In F. R. Volkmar (Ed.), Encyclopedia of autism spectrum disorders. New York, NY: Springer. https://doi.org/10.1007/978-1-4419-1698-3.
Levy, B. S., & Sidel, V. W. (2006). The nature of social injustice and its impact on public health. Oxford, UK: Oxford University Press.
Li, A., Curiel, H., Pritchard, J., & Poling, A. (2018). Participation of women in behavior analysis research: Some recent and relevant data. Behavior Analysis in Practice, 11(2), 160–164. https://doi.org/10.1007/s40617-018-0211-6.
Lucyshyn, J. M., Dunlap, G., & Albin, R. W. (2002). Families and positive behavior support: Addressing problem behavior in family contexts. Baltimore, MD: Paul H. Brookes.
Lynch, E. W., & Hanson, M. J. (2011). Develo** cross cultural competence: a guidefor working with children and their families. (4th ed). New York, NY: Paul HBrookes Publishing Co.
Mandell, D. S., Wiggins, L. D., Carpenter, L. A., Daniels, J., DiGuiseppi, C., Durkin, M. S., . . . Kirby, R. S. (2009). Racial/ethnic disparities in the identification of children with autism spectrum disorders. American Journal of Public Health, 99(3), 493–498. https://doi.org/10.2105/AJPH.2007.131243
Mayer, G. R., Sulzer-Azaroff, B., & Wallace, M. (2014). Behavior analysis for lasting change (3rd ed.). Cornwall-on-Hudson, NY: Sloan.
McFarland, J., Hussar, B., Wang, X., Zhang, J., Wang, K., Rathbun, A., . . . Bullock Mann, F. (2018). The condition of education 2018 (Report No. NCES 2018-144). Washington, DC: National Center for Education Statistics. Retrieved September 25, 2018, from https://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2018144
McKay, J., & Marshall, P. (2001). The dual imperatives of action research. Information Technology & People, 14(1), 46–59. https://doi.org/10.1108/09593840110384771.
McKenna, J. (2013). The disproportionate representation of African Americans in programs for students with emotional and behavioral disorders. Preventing School Failure: Alternative Education for Children and Youth, 57(4), 206–211. https://doi.org/10.1080/1045988X.2012.687792.
Murray-Garcia, J., & Tervalon, M. (2014). The concept of cultural humility. Health Affairs, 33, 1303. https://doi.org/10.1377/hlthaff.2014.0564.
Nosik, M. R., Luke, M. M., & Carr, J. E. (2018). Representation of women in behavior analysis: An empirical analysis. Behavior Analysis: Research and Practice. Advance online publication. https://doi.org/10.1037/bar000118.
Paasche-Orlow, M. (2004). The ethics of cultural competence. Academic Medicine, 79(4), 347–350. https://doi.org/10.1097/00001888-200404000-00012.
Partridge, W. L. (1985). Toward a theory of practice. American Behavioral Scientist, 29(2), 139–163. https://doi.org/10.1177/000276276485029002003.
Perera, H., Jeewandara, K. C., Senevirante, S., & Geruge, C. (2017). Culturally adapted pictorial screening tool for autism spectrum disorder: A new approach. World Journal of Clinical Pediatrics, 6(1), 45–51. https://doi.org/10.5409/wjcp.v6.i1.45.
Regional Center of the East Bay. (2017). Report on the implementation of the requirements of the California Welfare and Institutions Code Section 4519.5. Retrieved September 25, 2018, from https://rceb.org/sites/main/files/2017_report.pdf
Rider, E. A., Gilligan, M. C., Osterberg, L. G., Litzelman, D. K., Plews-Ogan, M., Weil, A. B., et al. (2018). Healthcare at the crossroads: The need to shape an organizational culture of humanistic teaching and practice. Journal of General Internal Medicine, 33(7), 1092–1099. https://doi.org/10.1007/s11606-018-4470-2.
Rosales, C. B., Coe, K., Ortiz, S., Gamez, G., & Stroupe, N. (2012). Social justice, health, and human rights education: Challenges and opportunities in schools of public health. Public Health Reports, 127, 126–130. https://doi.org/10.1177/003335491212700117.
Rosenberg, N. E., & Schwartz, I. S. (2018). Guidance or compliance: What makes an ethical behavior analyst? Behavior Analysis in Practice. Advance online publication. https://doi.org/10.1007/s40617-018-00287-5.
Schensul, J. J., & Schensul, S. L. (1992). Collaborative research: Methods of inquiry for social change. In M. D. LeCompte, W. L. Millroy, & J. Preissle (Eds.), Handbook of qualitative research in education (pp. 161–200). San Diego, CA: Academic Press.
Singer, M. (2006). Something dangerous: Emergent and changing illicit drug use and community health. Prospect Heights, IL: Waveland Press.
Skinner, B. F. (1953). Science and human behavior. Oxford, UK: Macmillan.
Spencer, N. J., Blackburn, C. M., & Read, J. M. (2015). Disabling chronic conditions in childhood and socioeconomic disadvantage: A systematic review and meta-analyses of observational studies. BMJ Open, 5, e007062. https://doi.org/10.1136/bmjopen-2014-007062.
Stokes, T. F., & Baer, D. M. (1977). An implicit technology of generalization. Journal of Applied Behavior Analysis, 10, 349–367. https://doi.org/10.1901/jaba.1977.10-349.
Sugai, G., O’Keeffe, B. V., & Fallon, L. M. (2012). A contextual consideration of culture and school-wide positive behavior support. Journal of Positive Behavior Interventions, 14(4), 197–208. https://doi.org/10.1177/1098300711426334.
Sundberg, M. L. (2008). VB-MAPP Verbal Behavior Milestones Assessment and Placement Program: A language and social skills assessment program for children with autism or other developmental disabilities. Concord, CA: AVB Press.
Tan, N. H. S. S. (2002). Deconstructing paternalism - What serves the patient best? Singapore Medical Journal, 43(3), 148–151.
Tax, S. (1958). The Fox Project. Human Organization, 17, 17–19. https://doi.org/10.17730/humo.17.1.b1gtr520r323687t.
Tax, S. (1960). Action anthropology. In F. Gearing, F. McNetting, & L. R. Peattie (Eds.), Documentary history of the Fox Project, 1948–1959 (pp. 167–171). Chicago, IL: University of Chicago Press.
Taylor, B. A., LeBlanc, L. A., & Nosik, M. R. (2018). Compassionate care in behavior analytic treatment: Can outcomes be enhanced by attending to relationships with caregivers? Behavior Analysis in Practice. Advance online publication. https://doi.org/10.1007/s40617-018-00289-3.
United Nations. United Nations Declaration of Human Rights. Retrieved Oct 24, 2018 from http://www.un.org/en/universal-declaration-human-rights.
U.S. Census Bureau. (2015, March 3). Projections of the size and composition of the U.S. population: 2014 to 2060 (Report No. CB15-TPS.16). Washington, DC: U.S. Government Printing Office.
U.S. Department of Health and Human Services. (2003). Develo** cultural competence in disaster mental health programs: Guiding principles and recommendations (HHS Publication No. SMA 3828). Rockville, MD: Author, Center for Mental Health Services Substance Abuse and Mental Health Services Administration.
Van Naarden-Braun, K., Christensen, D., Doemberg, N., Schieve, L., Rice, C., Wiggins, L., . . . Yeargin-Alisopp, M. (2015, April). Trends in the prevalence of autism spectrum disorder, cerebral palsy, hearing loss, intellectual disability, and vision impairment, metropolitan Atlanta, 1991–2010. PLoS One. Advance online publication. https://doi.org/10.1371/journal.pone.0124120
Walsh, F. (1996). The concept of family resilience: Crisis and challenge. Family Process, 35(3), 261–281. https://doi.org/10.1111/j.1545-5300.1996.00261.x.
Wenger, E., McDermott, R., & Snyder, W. M. (2002). Cultivating communities of practice: A guide to managing knowledge. Boston, MA: Harvard Business School Press.
Wesolowski, M. D. (2002). Pioneer profiles: An interview with Don Baer. The Behavior Analyst, 25, 135–150. https://doi.org/10.1007/BF03392053.
Westby, C. E., Burda, A., & Mehta, Z. (2003). Asking the right questions in the right ways: Strategies for ethnographic interviewing. The ASHA Leader, 8, 4–17. https://doi.org/10.1044/leader.FTR3.08082003.4.
Williams, L. W., Matson, J. L., Beighley, J. S., & Konst, M. (2015). Ethnic disparities in early autism assessment: A large scale screening study of infants and toddlers. Journal of Developmental and Physical Disabilities, 27(2), 141–148. https://doi.org/10.1007/s10882-014-9406-0.
Winett, R. A., Moore, J. F., & Anderson, E. S. (1991). Extending the concept of social validity: Behavior analysis for disease prevention and health promotion. Journal of Applied Behavior Analysis, 24(2), 215–230. https://doi.org/10.1901/jaba.1991.224-215.
Wlodkowski, R. J., & Ginsberg, M. B. (1995). A framework for culturally responsive teaching. Educational Leadership, 53(1), 17–21.
Woidneck, M. R., Pratt, K. M., Gundy, J. M., Nelson, C. R., & Twohig, M. P. (2012). Exploring cultural competence in acceptance and commitment therapy outcomes. Professional Psychology: Research and Practice, 43(3), 227–233. https://doi.org/10.1037/a0026235.
Wolf, M. W. (1978). Social validity: The case for subjective measurement or how applied behavior analysis is finding its heart. Journal of Applied Behavior Analysis, 11(2), 203–214. https://doi.org/10.1901/jaba.1978.11-203.
World Bank Group. (2016). Global monitoring report 2015/2016: Development goals in an era of demographic change. Washington, DC: Author.
Wright, J. (1983). In K. E. Allen & E. M. Goetz (Eds.), Early childhood education: Special problems, special solutions. Rockville, MD: Aspen.
Wulff, K., Donato, D., & Lurie, N. (2015). What is health resilience and how can we build it? Annual Reviews in Public Health, 36, 361–374. https://doi.org/10.1146/annurev-publhealth-031914-122829.
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Miller, K.L., Re Cruz, A. & Ala’i-Rosales, S. Inherent Tensions and Possibilities: Behavior Analysis and Cultural Responsiveness. Behav. Soc. Iss. 28, 16–36 (2019). https://doi.org/10.1007/s42822-019-00010-1
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DOI: https://doi.org/10.1007/s42822-019-00010-1