Abstract
Caregivers are important to the educational experiences of individuals with intellectual and developmental disabilities. Sexuality is an area of concern for many caregivers and parents. This study explores the relationship of caregiver perception of sexuality of individuals with intellectual and developmental disabilities, the caregiver perception of agency support for sex education, and their perception of their ability to participate in a sex education program designed specifically for individuals with intellectual and developmental disabilities.
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References
Lunsky, Y., Konstantareas, M.: The attitudes of individuals with autism and intellectual disability towards sexuality. Educ. Train. Intellect. Disabil. Dev. Disabil. 33, 24–33 (1998)
Owen, F., Griffiths, D., Feldman, M., Sales, C., Richards, D.: Attitude of a acceptable boundaries by persons with developmental disabilities and their careproviders. J. Dev. Disabil. 7, 34–49 (2000)
Shepperdson, B.: The control of sexuality in young people with Down’s syndrome. Child Care Health Dev. 21, 333–349 (1995)
Halstead, S.: Service-user and professional issues. J. Intellect. Disabil. Res. 46, 31–46 (2002)
McCabe, M.: Sexual knowledge, experience, and feelings among people with disability. Sex. Disabil. 17, 57–170 (1999)
McConkey, R., Ryan, D.: Experiences of staff dealing with client sexuality in services for teenagers and adults with intellectual disability. J. Intellect. Disabil. Res. 45, 83–87 (2001)
Hingsburger, D., Tough, S.: Healthy sexuality: attitudes, systems, and policy. Res. Pract. Pers. Sev. Disabil. 27, 8–17 (2002)
Wolfensberger, W.: The Principle of Normalization in Human Services. National Institute on Mental Retardation, Toronto (1972)
Reid, D.: Sexual activity in people with learning disability. Br. J. Learn. Disabil. 23, 56–58 (1995)
Ericson, K., Perlman, N., Isaacs, B.: Witness competency, communication issues and people with developmental disabilities. Dev. Disabil. Bull. 22, 101–109 (1994)
Randall, W., Parrila, R., Sobsey, D.: Gender, disability status, and risk for sexual abuse in children. J. Dev. Disabil. 7, 1–15 (2000)
Senn, C.: Vulnerable: Sexual Abuse and People with a Intellectual Handicap. Roeher Institute, Toronto (1988)
Sobsey, D.: Violence and Abuse in the Lives of People with Disabilities. Paul H. Brookes, Baltimore (1994)
Ward K., Trigler J., Pfeiffer K.: Community services, issues, and service gaps for individuals with developmental disabilities who exhibit inappropriate sexual behaviors. Ment. Retard. 39(1)11–19 (2001)
Aylott, J.: Is the sexuality of people with a learning disability being denied? Br. J. Nurs. 8, 438–442 (1999)
Block, P.: Sexuality, fertility, and danger: twentieth century images of women with cognitive disabilities. Sex. Disabil. 18, 239–254 (2000)
Lumley, V., Scotti, J.: Supporting the sexuality of adults with mental retardation: current status and future directions. J. Posit. Behav. Interv. 3, 109–119 (2001)
Nirje B.: The normalization principle and its human management implications. In: Kugel, R., Wolfensberger, W. (eds.) Changing Patterns in Residential Services for the Mentally Retarded. Government Printing Office, Washington, DC (1972)
Ward, K., Trigler, J., Pfeiffer, K.: Community services, issues, and service gaps for individuals with developmental disabilities who exhibit inappropriate sexual behaviors. Ment. Retard. 39(1), 11–19 (2001)
Andrews, A., Vernon, L.: Sexual assault and peoples with disabilities. Special issue: sexuality and disabilities: a guide for human service practitioners. J. Soc. Work Hum. Sex. 8, 137–159 (1993)
Ajzen, I., Fishbein, M.: Understanding Attitudes and Predicting Social Behavior. Englewood Cliffs, Prentice-Hall (1980)
Wolfensberger, W., Tullman, S.: A brief outline of the principle of normalization. Rehabil. Psychol. 27, 131–145 (1982)
Scotti, J., Slack, B., Bowman, R., Morris, T.: College student attitude concerning the sexuality of persons with mental retardation: development of the perceptions of sexuality scale. Sex. Disabil. 14, 249–263 (1996)
Cuskelly, M., Bryde, R.: Attitudes towards the sexuality of adults with intellectual disability: parents support staff, and community sample. J. Intellect. Dev. Disabil. 29, 255–264 (2004)
DiGiulio, G.: Sexuality and people living with physical or developmental disabilities: a review of key issues. Can. J. Hum. Sex. 12, 53–68 (2003)
Karellou, J.: Development of the Greek Sexuality Attitudes Questionnaire-Learning Disabilities (GSAQ-LD). Sex. Disabil. 21, 113–135 (2003)
Karellou, J.: Laypeople’s attitudes toward the sexuality of people with learning disabilities in Greece. Sex. Disabil. 21, 65–84 (2003)
Kendall, M., Booth, S., Fronek, P., Miller, D., Geraghty, T.: The development of a scale to assess the training needs of professionals in providing sexuality rehabilitation following spinal cord injury. Sex. Disabil. 21, 49–64 (2003)
Lumley, V., Scotti, J.: Supporting the sexuality of adults with mental retardation: current status and future directions. J. Posit. Behav. Interv. 3, 109–119 (2001)
Milligan, M., Neufeldt, A.: The myth of asexuality: a survey of social and empirical evidence. Sex. Disabil. 19, 91–109 (2001)
Swango-Wilson, A.: Caregiver Attitude of Sexuality of the Intellectually Disabled Population and Implications for Sex Education. Unpublished doctoral dissertation, Walden University, Minneapolis (2007)
Lofgren-Martenson, L.: “May I?” About sexuality and love in the new generation with intellectual disabilities. Sex. Disabil. 22, 197–207 (2004)
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Swango-Wilson, A. Caregiver Perceptions and Implications for Sex Education for Individuals with Intellectual and Developmental Disabilities. Sex Disabil 26, 167–174 (2008). https://doi.org/10.1007/s11195-008-9081-0
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DOI: https://doi.org/10.1007/s11195-008-9081-0