Abstract
To define and give priority to standards of care and quality indicators of multidisciplinary care for patients with psoriatic arthritis (PsA). A systematic literature review on PsA standards of care and quality indicators was performed. An expert panel of rheumatologists and dermatologists who provide multidisciplinary care was established. In a consensus meeting group, the experts discussed and developed the standards of care and quality indicators and graded their priority, agreement and also the feasibility (only for quality indicators) following qualitative methodology and a Delphi process. Afterwards, these results were discussed with 2 focus groups, 1 with patients, another with health managers. A descriptive analysis is presented. We obtained 25 standards of care (9 of structure, 9 of process, 7 of results) and 24 quality indicators (2 of structure, 5 of process, 17 of results). Standards of care include relevant aspects in the multidisciplinary care of PsA patients like an appropriate physical infrastructure and technical equipment, the access to nursing care, labs and imaging techniques, other health professionals and treatments, or the development of care plans. Regarding quality indicators, the definition of multidisciplinary care model objectives and referral criteria, the establishment of responsibilities and coordination among professionals and the active evaluation of patients and data collection were given a high priority. Patients considered all of them as important. This set of standards of care and quality indicators for the multidisciplinary care of patients with PsA should help improve quality of care in these patients.
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We would like to thank Cremer consulting for providing editing support.
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This study was funded by an unrestricted grant from the Spanish Foundation of Rheumatology.
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JG, JL, PC and RQ participated in the study design. All of the authors took part in the rest of the study phases, contributed in this article discussion and reviewed the final version. We confirm that this research did not involve humans. There just was a focus groups with patients that gave their opinion on quality of care.
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José Carlos Ruiz Carrascosa has received honoraria for presentations and research projects from Abbvie, Pfizer, Novartis, MSD, Janssen. Conrad Pujol has received honoraria for research projects, advisory boards and education activities from Abbvie, Janssen, LEO, MSD, Novartis, Pfizer. Raquel Rivera has received honoraria for research projects, advisory boards, presentations and education activities from Abbvie, Celgene, Janssen, Leo-Pharma, Lilly, MSD, Novartis, Pfizer. The rest of participants claim no conflicts of interest.
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We confirm that this research did not involved humans. There just was a focus groups with patients that gave their opinion on quality of care.
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Gratacós, J., Luelmo, J., Rodríguez, J. et al. Standards of care and quality indicators for multidisciplinary care models for psoriatic arthritis in Spain. Rheumatol Int 38, 1115–1124 (2018). https://doi.org/10.1007/s00296-018-3986-4
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DOI: https://doi.org/10.1007/s00296-018-3986-4